human milkJoin PreemieWorld and our sponsors in our fight to secure informed feeding options for all babies in the NICU.

 


Sign our petition:

World Prematurity Petition

Dear Friend,

This petition is to call on NICUs to implement nutritional education and consent forms for ALL feeding options available to premature babies in the NICU. That would include mother's breast milk, donor breast milk, human milk fortifier, bovine-based fortifier and bovine-based formula.

Feeding my preemie daughter was honestly the only thing I felt I had control over in the Neonatal Intensive Care Unit (NICU), and that meant a lot.

Being suddenly plummeted into the confusing and terrifying world of the NICU, I found myself handing over the reins of my helpless 30-week old daughter Becky to strangers. Suddenly my voice was trumped by medical science and the team of doctors and nurses knew better. Even how my daughter was fed was under their control, their scrutiny.

With no help except my maternal instinct, I started pumping breast milk within hours after my daughter was born. I pumped and pumped and pumped and still the team added bovine or cow-based fortifier (formula) to her diet. I didn't know until they had already done it. I was not asked in advance and I had no idea what that meant at the time.

That was 14 years ago, and a lot has changed in terms of the clinical data around the need for exclusive human milk in very low birthweight babies. Simply put, parents have the right to be educated about their options and understand the ramifications of their choice.

Every NICU should have a mandatory consent form on feeding options for the baby just as there is a signature required for all vaccines. Nutrition is not simply food, it is medicine.

Most especially for preemies born under 1,250 grams (roughly 2 and a half pounds), nutrition is not simply food, it is medicine. Anything fed to them beyond mom’s milk, human donor milk and a human milk-based fortifier is going to be problematic. Nutrition can be life-saving, or it can be life-threatening.

Though mother nature has not showed us all the reasons preemies develop necrotizing enterocolitis or NEC, we do know it is one of the most common and life-threatening conditions of the GI system. And we know that a 100% human milk diet inclusive of mom’s milk or donor milk plus a human milk-based fortifier can reduce NEC by 77%. Implementing this as the standard of care in our nation would go a very long way to helping preemies thrive.

This petition is done in memory of all preemies that have died and/or suffered from Necrotizing Enterocolitis (NEC). Please know your rights, understand the data, and remember you do have a voice – the strongest voice for your baby.

Love,
Deb Discenza, PreemieWorld (www.PreemieWorld.com)


With Support From:

Connected Forever (www.connected4ever.org)
Courageous Steps (http://couragessteps.org)
Hand to Hold (www.HandtoHold.org)
Kelley French, author of Juniper: The Girl Who Was Born Too Soon, mom to 23-weeker who perforated twice (www.juniperbook.com)
Morgan Leary Vaughan Fund (www.morgansfund.org)
NEC Society (www.NECSociety.org)
National Association of Perinatal Social Workers (www.napsw.org)
National Coalition for Infant Health (www.infanthealth.org)
National Black Nurses Association (www.nbna.org)
Nurtured by Design (www.nurturedbydesign.com)
PeekaBoo ICU (www.peekabooicu.org)
The Tangerine Owl Project (www.tangerineowl.org)
Team Grayson (www.teamgrayson.org)
The Tiny Miracles Foundation (www.ttmf.org)
Zoe Rose Memorial Foundation (www.zoerose.org)


Disclosure:

This initiative has been put in place solely by PreemieWorld, LLC which has received no commercial financial support, bias or input.

**your signature**

243 signatures = 24% of goal
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Latest Signatures
243 Ms Lakevia W. Jun 05, 2018
242 Mrs Louise T. May 18, 2018
241 Miss Catherine H. May 15, 2018
240 Ms April P. May 10, 2018
239 Ms Donna W. Apr 12, 2018
238 Dr. Alexander P. Apr 06, 2018
237 Ms Maddi M. Mar 31, 2018
236 Ms Mary Anne R. Mar 25, 2018
235 Ms Sydney H. Mar 19, 2018
234 Dr. Martha D. Mar 07, 2018
233 Ms Arianne M. Mar 01, 2018
232 Ms Ashley R. Mar 01, 2018
231 Ms Jelli K. Feb 26, 2018
230 Mrs Michelle S. Feb 25, 2018
229 Ms Linda V. Feb 25, 2018
228 Ms Jackie J. Feb 24, 2018
227 Ms Nicole M. Feb 24, 2018
226 Mrs Judy W. Feb 24, 2018
225 Mrs Patricia S. Feb 23, 2018
224 Ms Sarah K. Feb 23, 2018
223 Ms Heidi C. Feb 23, 2018
222 Ms Saralyn L. Feb 23, 2018
221 Mrs HOLLY M. Feb 23, 2018
220 Mrs Kathleen R. Feb 21, 2018
219 Mrs Holly L. Feb 21, 2018
218 Dr. Mohammed A. Feb 20, 2018
217 Ms Kristy B. Feb 20, 2018
216 Mrs Heather M. Feb 18, 2018
215 Mrs Jeanette L. Feb 18, 2018
214 Ms Kristine A. Feb 16, 2018
213 Ms Sherry A. Feb 15, 2018
212 Ms Susan H. Feb 15, 2018
211 Ms Debbie K. Feb 15, 2018
210 Dr. Melinda E. Feb 15, 2018
209 Mrs Lauren L. Feb 15, 2018
208 Ms Heather H. Feb 15, 2018
207 Ms Donna G. Feb 15, 2018
206 Mr Michael P. Feb 15, 2018
205 Ms Caitlyn M. Feb 15, 2018
204 Ms Kelley R. Feb 15, 2018
203 Mrs Denise M. Feb 15, 2018
202 Ms susan r. Feb 15, 2018
201 Ms diane s. Feb 15, 2018
200 Mrs Rosemary F. Feb 15, 2018
199 Ms Yesenia M. Feb 14, 2018
198 Ms Erin S. Feb 14, 2018
197 Ms Ghada N. Feb 13, 2018
196 Ms Clare C. Feb 13, 2018
195 Ms Etienne F. Feb 13, 2018
194 Mrs Nadia K. Feb 13, 2018

Petition Sponsors:

NEC Society

www.NECSociety.org

The Morgan Leary Vaughan Fund

http://www.morgansfund.org/

National Coalition for Infant Health

www.infanthealth.org

Connected Forever

www.connected4ever.org

Courageous Steps

http://couragessteps.org

National Black Nurses Association

www.nbna.org

PeekaBoo ICU

www.peekabooicu.org

Hand to Hold

www.HandtoHold.org

Team Grayson

www.teamgrayson.org

The Tiny Miracles Foundation

www.ttmf.org

Kelley French, author of Juniper: The Girl Who Was Born Too Soon, mom to 23-weeker who perforated twice

www.juniperbook.com

National Association of Perinatal Social Workers

www.napsw.org

Nurtured by Design

www.nurturedbydesign.com

Zoe Rose Memorial Foundation

www.zoerose.org

The Tangerine Owl Project

www.tangerineowl.org

Dandy-Walker Alliance

dandy-walker.org

Patient Advocacy Strategies

www.patientadvocacystrategies.com

Jen Degl, author of From Hope to Joy: A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds

www.fromhopetojoy.com


View our Special Edition

human milkCheck out PreemieWorld’s Special Edition Newsletter on Exclusive Human Milk Diets and learn why breastmilk is the best nutrition for your preemie.


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