Preemie Directory
Whether you are looking for a support group or general preemie-related resources, chances are that our global Preemie Directory has it.
To see a full listing, simply click on the “arrowed” icon on the left, then click “All Items.”
Is your organization listed here? Need to make changes? Please click here to fill out our form.
Advocacy
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Cerebral Palsy Alliance
Cerebral Palsy Alliance is a non-profit that provides services to thousands of people with a disability and their families. Cerebral palsy (CP) is a physical disability that affects the way that a person moves. Australia
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The Smallest Things Charity
Welcome to The Smallest Things, a registered charity promoting the good health of premature babies and their families.
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United Cerebral Palsy
Organization devoted to advocacy, research and more for individuals with Cerebral Palsy. US
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Benefits
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Children's Health Insurance Program (CHIP)
Learn about free/low-cost health & dental coverage for children through Medicaid & CHIP for qualified children and help spread the word. US
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Medicaid
The Center for Medicaid and CHIP Services (CMCS) is one of six centers within the Centers for Medicare & Medicaid Services, an agency of the U.S. Department of Health and Human Services (HHS). CMCS serves as the focal point for all national program policies and operations related to Medicaid and the Children's Health Insurance Program (CHIP). US
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Bereavement
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AgapeCare Cradle
UNITED STATES. Faith-based project to help families in the Wichita, Kansas area surrounding the loss of an infant in providing material support, planning support and emotional support. US
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A Place to Remember
UNITED STATES. Uplifting support resources for those who have been touched by a crisis in pregnancy or the death of a baby. US
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Center for Loss in Multiple Birth (CLIMB), Inc.
UNITED STATES. Provides parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood. It is also to assist extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss. US
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Ellie's Light
MINNESOTA. To keep Ellie’s Light shining by supporting families with children experiencing severe chronic, terminal or critical illnesses, and those who have recently experienced the sudden loss of a child. US
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Faith's Lodge
UNITED STATES. Grief is your own personal journey. We provide a serene stop along the way. A place where those coping with the death or medically complex condition of a child can find hope and strength for the future. Not to forget; but to reflect. We warmly invite you to take a leap of faith. US
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Heaven's Gain
UNITED STATES. Provides small burial caskets for miscarried, premature and early stillborn babies. US
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Jalen's Gift Foundation
UNITED STATES. Provides financial assistance for memorial services, emotional grief support, informational resources on pregnancy and infant loss, and a memorial keepsake to the suffering families and to the hospitals. US
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Memory JAR
UNITED STATES. Comforting Ideas for Grief, Funeral Planning, Anniversary Planning US
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Now I Lay Me Down to Sleep
UNITED STATES. Non-profit providing access to photographers worldwide for families who have lost an infant. US
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Perinatal Hospice and Palliative Care: Continuing Your Pregnancy
Perinatal hospice and palliative care is for families who continue their pregnancies with babies whose lives are expected to be brief. US
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Remembering Our Babies - October 15th
UNITED STATES. Pregnancy and Infant Loss Remembrance Day is on October 15th each year for the community of grieving parents to come together and remember their beloved babies. US
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Skyler's Gift Foundation
Grants for funerals for infants who have died due to premature birth as well as funding to research toward ending premature birth. US
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The Beautiful Scar Project
UNITED STATES. The Beautiful Scar Project’s mission is to provide families grieving the death of their infant due to miscarriage, stillbirth, and neonatal death the tools to turn the loss of their much loved and desired baby into a beautiful scar. US
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Black Maternal Health Organizations
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Black Mamas Matter Alliance
Black Mamas Matter Alliance is a Black women-led cross-sectoral alliance. We center Black mamas to advocate, drive research, build power, and shift culture for Black maternal health, rights, and justice. US
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Black Mothers Breastfeeding Association
Black Mothers Breastfeeding Association’s goal is to have a national impact on the reduction of racial disparities in breastfeeding success for black families. US
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National Black Development Institute
For more than 50 years, the National Black Child Development Institute (NBCDI) has been at the forefront of engaging leaders, policymakers, professionals, and parents around critical and timely issues that directly impact Black children and their families. US
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SISTA MIDWIFE PRODUCTIONS
Sista Midwife Productions is a birth advocacy organization based in New Orleans, LA. We provide education, training and consultations for communities, birth workers and organizations that work with child bearing families. US
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Breastfeeding
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Black Mothers Breastfeeding Association
UNITED STATES. To reduce racial inequities in breastfeeding support for African Americans by building foundational networks of support, and strengthening systems to overcome historical, societal and social barriers to breastfeeding success. US
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Work. Pump. Repeat. by Jessica Shortall
UNITED STATES. Great book for helping mothers handle pumping breast milk while going back to work. US
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Child Development
Coalition
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EFCNI
INTERNATIONAL. Led by Silke Mader, this organization has a membership that spans the far reaches of Europe's preemie support groups and together they provide a advocacy voice for newborns and their families. DE
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Family Advocacy Network (National Perinatal Association)
UNITED STATES. Provides 1) a regular consulting call for groups supporting NICU parents, 2) a database of support groups, and 3) a regular conversation between NICU psychologists. US
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Global Alliance to Prevent Prematurity & Stillbirth
INTERNATIONAL. A neonatologist and a pediatric infectious disease specialist at Seattle Children’s formed GAPPS to accelerate research into the o causes and mechanisms of preterm birth and stillbirth in order to reduce the impact on children, families, and the community. US
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National Coalition for Infant Health (NCfIH)
UNITED STATES. Advocates on behalf of premature infants from birth to age two. NCfIH envisions safe, healthy infants whose families can access the information, care and treatment their babies need. US
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NICU Parent Network
UNITED STATES. The NICU Parent Network represents organizations that provide support to parents of preemies. The Alliance is committed to helping it's members provide quality information, resources, and support efficiently and effectively for the families we serve. US
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Disability
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Easter Seals
CHICAGO, ILLINOIS.To provide exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. United States
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Genetic and Rare Diseases Information Center
GAITHERSBURG, MARYLAND. Provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish. United States
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Genetics Home Reference
BETHESDA, MARYLAND. Provides consumer-friendly information about the effects of genetic variation on human health. United States
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Global Genes Project
ALISO VIEJO, CALIFORNIA. To Eliminate the Challenges of Rare Disease. United States
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IDEA 2004, Part C
UNITED STATES. To provide a "one-stop shop" for resources related to Part C of the Individuals with Disabilities Education Act (IDEA) and its implementing regulations, announced on September 6, 2011. United States
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Orphanet
PARIS, FRANCE. To provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. France
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Rare Genomics Institute
DOWNEY, CALIFORNIA. To help rare disease patients find hope for a cure. United States
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Disability Resources
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IRLU
UNITED STATES. Creates opportunities for independence for people with disabilities through research, education, and consultation. US
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Job Accommodation Network (United States Department of Labor)
UNITED STATES. The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. US
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Pacer Center
UNITED STATES. PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. US
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Early Childhood
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Center for Early Learning and Literacy
MORGANTON, NORTH CAROLINA. To promote the adoption and sustained use of evidence-based early literacy learning practices. United States
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Center for Parent Information and Resources
NEWARK, NEW JERSEY. Serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities. United States
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Childcare Aware
ARLINGTON, VIRGINIA. To help families learn more about the elements of quality child care and how to locate programs in their communities. United States
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Early Childhood Technical Assistance Center (ECTAC)
CHAPEL HILL, NORTH CAROLINA. Improving state systems, increasing implementation of effective practices, and enhancing child and family outcomes. United States
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Head Start
UNITED STATES. To promote school readiness of children ages birth to 5 from low-income families by supporting their development in a comprehensive way. United States
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Healthy Children (by the American Academy of Pediatrics)
ELK GROOVE VILLAGE, ILLINOIS. The only parenting website backed by 66,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. United States
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EASTER SEALS
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Easterseals-Goodwill North Dakota
EASTER SEALS GOODWILL ND, INC. IS A LEADING ORGANIZATION IN SUPPORTING CHILDREN, ADULTS, AND FAMILIES TO HAVE EQUAL OPPORTUNITIES TO LIVE, LEARN, WORK, AND PLAY IN THEIR COMMUNITIES US
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Easterseals-Goodwill Northern Rocky Mountain
We’re passionate about providing opportunities for people to access the skills, support and encouragement they need to achieve greater independence. Whether we’re teaching adults with intellectual disabilities daily living skills, helping low-income workers find meaningful employment, or assisting elderly adults with household chores so they can remain at home, the goal of all Easterseals-Goodwill services is to help people increase their independence and improve their lives. US
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Easterseals Alabama
Easterseals provides exceptional services to ensure that all people with disabilities have equal opportunities to live, learn, work and play. US
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Easterseals Alaska
Easterseals Alaska provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. US
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Easterseals Arc of Northeast Indiana
Easterseals Arkansas provides exceptional services, education, outreach, and advocacy so that people with disabilities can live, learn, work and play in our communities. Easterseals Arkansas has been helping individuals with disabilities and special needs, and their families, live better lives for more than 75 years. US
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Easterseals Blake Foundation
Easterseals Blake Foundation is dedicated to the vision of a Southern Arizona community where all people live healthy, productive, and independent lives. EBF serves more than 44,000 individuals and families across 10 counties of Southern Arizona US
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Easterseals Capital Region & Eastern Connecticut
To provide exceptional services to ensure that all people with disabilities and their families have equal opportunities to live, learn, work and play in their communities. US
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Easterseals Cardinal Hill
“Your life and mine should be valued not by what we take…but by what we give.” – EDGAR ALLEN, EASTER SEALS FOUNDER US
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Easterseals Central and Southeast Ohio
Easterseals’ purpose is to change the way the world defines and views disability by making profound, positive differences in people’s lives every day. We provide exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. Easterseals offers a variety of services to help people address challenges and achieve personal milestones throughout their life. US
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Easterseals Central California
Easterseals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. US
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Easterseals Central Illinois
Easterseals Central Illinois provides exceptional services to ensure that children with developmental delays, disabilities and other special needs can reach their full potential. US
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Easterseals Colorado
As a vital resource for all people with disabilities, older adults and caregivers in rural and urban communities across the state, Easterseals Colorado provides programs and supports that enhance quality of life and create opportunities for greater independence at home, at work and at play. By advocating for an equitable and inclusive Colorado, we ensure those we serve have the rights and resources to thrive. US
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Easterseals Crossroads
Our purpose is to change the way the world defines and views disability by making profound, positive differences in people’s lives every day right here in central Indiana. Easterseals Crossroads is your community resource dedicated to serving individuals with disabilities achieve milestones in independence from birth through later life. US
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Easterseals DC MD VA
Easterseals makes profound, positive differences in the daily lives of people of all ages with disabilities, special needs, military backgrounds and their families. US
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Easterseals Delaware & Maryland's Eastern Shore
Easterseals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. US
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Easterseals DuPage & Fox Valley
Our mission is to enable infants, children, and adults with developmental delays and disabilities to achieve their maximum independence, and to provide support for the families who love and care for them. US
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Easterseals Eastern Pennsylvania
Easterseals Eastern Pennsylvania creates life-changing solutions for individuals with disabilities and their families in their community by increasing independence, maximizing opportunities, minimizing barriers and enhancing quality of life. US
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Easterseals East Georgia
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Easterseals Florida
Our purpose at Easterseals Florida is to change the way the world defines and views disabilities by making profound, positive differences in people's lives every day. US
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Easterseals Greater Houston
Nationally, Easter Seals is the leading non-profit provider of services for individuals with autism, developmental disabilities, physical disabilities, other special needs, service members, Veterans and their families. For over 70 years, Easter Seals Greater Houston has been offering help, hope and answers to people of all ages with disabilities and their families. US
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Easterseals Hawaii
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Easterseals Iowa
Easterseals Iowa provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.
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Easterseals Joliet Region
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Easterseals Louisiana
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Easterseals Maine
Easterseals provides exceptional services, education, outreach, and advocacy so that Veterans, people living with autism and other disabilities can live, learn, work and play in our communities. Easterseals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 90 years. US
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Easterseals Massachusetts
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Easterseals Michigan
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Easterseals Middle Georgia
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Easterseals Midwest
Easterseals Midwest provides exceptional services, education, outreach, and advocacy so that people with disabilities can live, learn, work, and play in our communities. From autism parent training workshops to job training, Easterseals offers autism resources, community living support, employment training, and early childhood services to change the way the world defines and views disability. US
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Easterseals Nebraska
Easterseals Nebraska provides exceptional services to help ensure all people with disabilities have an equal opportunity to live, learn, work and play. US
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Easterseals New Hampshire
Easterseals provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. US
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Easterseals New Jersey
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Easterseals New York
Easterseals New York provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. We change the way the world defines and views disability by making profound, positive differences in people's lives every day. US
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Easterseals Northeast Central Florida
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Easterseals Northern California
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Easterseals Northern Ohio
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Easterseals North Georgia
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Easterseals North Texas
Easterseals North Texas helps more than 4,500 individuals every year become more independent. Our therapists, job coaches, and other professionals make profound differences every day in the way people live, learn, work, and play. As a part of the community since 1939, we deliver high-quality, customized care to our neighbors. US
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Easterseals of Mahoning, Trumbull & Columbiana
Easterseals of Mahoning, Trumbull and Columbiana Counties provides exceptional services to children and adults, specifically those with disabilities, so they can live, learn, work and play in our communities. US
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Easterseals of Oak Hill
Easterseals Serving Coastal Fairfield County, Connecticut provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. US
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Easterseals Oregon
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Easterseals Rehabilitation Center
At the Easterseals Rehabilitation Center in Evansville, IN, we're working to make profound, positive differences in the lives of local people every day, and to change the way our community defines and views disability. US
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Easterseals Rhode Island
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Easterseals Rio Grande Valley, Texas
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Easterseals San Antonio Rehabilitation Center
Easterseals provides exceptional services, education, outreach, and advocacy so that Veterans, people living with autism and other disabilities can live, learn, work and play in our communities. Easterseals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 90 years. US
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Easterseals Serving Central Texas
To change the way the world defines and views disability by making profound, positive differences in people's lives every day. US
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Easterseals Serving Chicagoland and Greater Rockford
Easterseals serving Chicagoland and Greater Rockford serves nearly 30,000 clients annually and proudly employs 600+ dedicated professionals in programs across the Chicagoland and Rockford regions of Illinois. US
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Easterseals Serving Greater Cincinnati
We change the way the world views and defines disability by making profound and positive differences in people's lives every day. In Greater Cincinnati, we do this with a focus on building a more diverse and inclusive workforce and community. US
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Easterseals Serving Greater Waterbury, Central and Northwest Connecticut
For over 60 years, Easterseals has been a dedicated resource for people and families facing disability. We honor this legacy and embrace our future with a renewed commitment to enhance possibilities for people of all ages and abilities. We’re fostering and advocating for environments where everyone is included and valued, making a real and positive impact on people’s lives every day. US
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Easterseals Serving Southern Georgia and the Big Bend of Florida
Easterseals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. US
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Easterseals South Carolina
We are changing the way the world defines and views disabilities by making profound, positive differences in people’s lives every day. Easterseals South Carolina strives to be a leader in the field of delivering exceptional services that help build communities where all people with developmental disabilities have equal opportunities to live, learn, work, and play. US
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Easterseals Southeastern Pennsylvania
Easterseals of Southeastern Pennsylvania's mission is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities US
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Easterseals Southeast Wisconsin
Every year we work with thousands of children, adults, and families in eight counties through a variety of programs and services. Our professionals help young children learn to walk or be ready for school, create smiles and laughter at our camps, teach young adults work skills and help them find their first job, and provide support for older adults so they can continue living in a home that they love. US
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Easterseals Southern California
At Easterseals, our purpose is to change the way the world defines and views disability. The services provided by Easterseals Southern California (ESSC) – in Los Angeles, Orange, San Diego, Imperial, Kern, San Bernardino, Riverside and Ventura counties – make profound and positive differences in people's lives every day, helping them address life’s challenges and achieve personal goals so that they can live, learn, work and play in our communities. US
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Easterseals South Florida
Easterseals South Florida provides exceptional services, education, outreach, and advocacy so that people living with disability can live, learn, work and play in their communities. We promote inclusiveness so individuals and their families can achieve exceptional results. Our services help people with disabilities address life's challenges and achieve personal goals. US
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Easterseals Southwest Florida
Easterseals Southwest Florida also known as Happiness House has been part of our community since 1946. We offer the highest quality of care and services to children, youth and adults with special needs so that they can enjoy access, opportunities, and increased life choices. US
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Easterseals Southwest Human Development
Southwest Human Development strengthens the foundation Arizona’s children need for a great start in life. US
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Easterseals Superior California
Easterseals Superior California is dedicated to empowering people with disabilities by offering a wide range of services and leadership opportunities designed to encourage maximum independence. US
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Easterseals Tennessee
The mission of Easterseals Tennessee is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their community. US
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Easterseals UCP North Carolina & Virginia
Easterseals UCP provides meaningful and exceptional services so that children, adults and families living with disabilities, behavioral health challenges and autism can live, learn, work and play in their communities. US
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Easterseals Vermont
Easterseals Vermont provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. US
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Easterseals Washington
Changing the way the world defines and views disabilities by making profound, positive differences in people's lives every day. US
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Easterseals Western and Central Pennsylvania
For more than 100 years Easterseals has been the indispensable resource for people and families challenged by disabilities. Now as America faces a broad range of new issues, we make a major positive life-changing difference in the lives of people and families facing today's disabilities. Easterseals Western and Central Pennsylvania provides exceptional programs and services, in 47 Pennsylvania counties, to ensure that people with disabilities or other special needs and their families have equal opportunities to live, learn, work and play in their communities. US
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Easterseals West Georgia
The mission of Easterseals West Georgia, Inc. is to provide quality services which enable individuals with disabilities or special needs and their families to achieve their maximum potential. US
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Easterseals West Kentucky
Easterseals West Kentucky's mission is to enhance the quality of life for children and adult of all abilities by promoting personal development, independence, inclusion, and equality.
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Easterseals West Virginia
Easterseals Rehabilitation Center is committed to changing lives through rehabilitative medical care and pediatric therapy in the Ohio Valley. We treat a variety of developmental, physical, and sensory challenges and accept all commercial insurance. No one has ever been denied care because of an inability to pay, which is why community support is vital to our mission. US
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Easterseals Wisconsin
Since 1926, Easterseals Wisconsin has been creating life-changing solutions for individuals with disabilities and their families. Our mission is to increase independence, maximize opportunities, minimize barriers, and enhance the quality of life for people with disabilities. US
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Easterseals Wyoming
We currently provide services for adults with intellectual and developmental disabilities who are participating in HCBS Medicaid Waiver services through the Wyoming Department of Health, Developmental Disability Services division. We also offer many private pay options through these services. US
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Goodwill-Easterseals Minnesota
Goodwill-Easter Seals Minnesota is a 501(c)3 nonprofit that provides job training and career navigation services to eliminate barriers to work and independence. Revenue from nearly 50 retail stores ― along with grants and financial contributions ― supports Minnesotans with digital literacy skills, resume development, understanding government benefits and more. Shopping and donating helps divert over 65 million pounds from landfills annually and have helped us connect people to jobs since 1919. US
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Goodwill Easterseals Miami Valley
Every day, we strive with passion and energy to improve the lives of the people we serve through excellent customer service in an exceptional healthy and safe work place. Learn about Goodwill Easterseals Miami Valley; our organization, its history, mission, and values that guide us and the work in the communities we serve. US
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FAMILY SUPPORT & RESPITE SERVICES IN CANADA
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Algoma
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Cape Breton Region (Nova Scotia)
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Central Region (Nova Scotia)
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Chatham-Kent
respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in Chatham-Kent. US
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Cochrane Temiskaming
respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in the Cochrane Temiskaming District. US
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Dufferin
Working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives. US
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Elgin
respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in Elgin County. Participants include representatives of the Elgin Respite Network as well as their community partners. US
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Frontenac/Lennox/Addington
“respiteservices.com - working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Haliburton, Kawartha, Peterborough, Northumberland
respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in Haliburton, Kawartha, Peterborough and Northumberland. The Respite Advisory Team was developed in 1999 to recognize and respond to the respite needs within the four counties area. US
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Halton
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Hamilton
Respite care is a family support service that provides temporary or short term care / support for a family member who has a developmental and/or physical disability. Respite creates opportunities for all family members to live actively. US
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Hastings/Prince Edward
respiteservices.com consists of agencies funded by the Ministry of Children, Community and Social Services . We are collaborating to develop a more dynamic respite network for both children and adults in the counties of Hastings and Prince Edward. US
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Leeds & Grenville
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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London / Middlesex
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Muskoka, Parry Sound & Nipissing
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Northern Region (Nova Scotia)
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Peel
"respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives." US
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Perth County
respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. US
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Sarnia-Lambton
respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in Lambton. US
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Simcoe
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Sudbury & Manitoulin
“supportyourway.ca / respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Thunder Bay & District
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Toronto
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives" US
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Waterloo
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Wellington
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Western Region (Nova Scotia)
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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Windsor / Essex
“respiteservices.com working together to facilitate respite options that empower individuals with differing abilities and their families to lead active and rewarding lives.” US
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York Region
respiteservices.com/ CHAP (Community Helpers for Active Participation) is comprised of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in York Region. US
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Financial
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Bridges to Access (GlaxoSmithKline)
UNITED STATES. Offers Advair, Flonase, Flovent, Serevent and Ventolin HFA medicines to those who qualify. US
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Compassionate Allowances via Social Security Administration
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Medicaid & CHIP
UNITED STATES. Government benefits program for public. United States
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Medicaid Waivers
UNITED STATES. Listing of the various Medicaid waivers for each state in the United States. Also provides a nice history of Medicaid. Created by Complex Child Magazine a free digital magazine of articles related to raising a child with complex needs. US
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Nestle Healthcare Nutrition Patient Assistance Programs
UNITED STATES. Provides financial help for specialty nutrition by Nestle for tube and oral feedings US
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Pediatric Assistance Fund (Healthwell Foundation)
UNITED STATES. Provides grants for medical treatments. US
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Supplemental Security Income (SSI)
UNITED STATES. Government benefits program for public. United States
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Women, Infants & Children (WIC)
UNITED STATES. Government benefits program for public. United States
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Human Milk Banks
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Aalborg
As Region North Jutland's largest hospital, Aalborg University Hospital has a central role in the cooperating North Jutland healthcare system. We deliver high professional quality, and our patients are among the most satisfied in the country. Denmark
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Aarhus
Aarhus University Hospital offers specialised treatment to citizens in the Central Denmark Region and other regions in Denmark. Aarhus University Hospital is the local hospital for citizens in Aarhus city and the island of Samso. Denmark
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Barcelona
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Breast milk bank
History - A breast milk bank in Sofia is the only one of its kind in Bulgaria and one of the few similar structures on the Balkan Peninsula. It was opened on June 1, 1989 by the Ministry of Public Health. BMC is a structure of Sofia Municipality. BULGERIA
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CHC site St Vincent
The CHC health group is a key player in the healthcare landscape of the province of Liège. We mainly welcome patients and residents from the outskirts of Liège, but also, increasingly, thanks to the diversity of our and our partnerships, patients who are more distant geographically. Belgium
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Chemnitz: Klinikum
Mother's milk is the preferred food for all premature and newborn babies. Human milk can be essential for survival, especially for premature babies. Germany
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CHR Citadelle
Belgium
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Clinique Universitaire de Bruxelles Hôpital Erasme
Belgium
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Cottbus: Carl-Thiem-Klinikum
Mother's milk is the preferred food for all premature and newborn babies. Human milk can be essential for survival, especially for premature babies. Germany
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Córdoba
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Dortmund: Klinikum
Mother's milk is the preferred food for all premature and newborn babies. Human milk can be essential for survival, especially for premature babies. GERMANY
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Dresden: Universitätsklinik Carl Gustav Carus
Mother's milk is the preferred food for all premature and newborn babies. Human milk can be essential for survival, especially for premature babies. Germany
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Estonia
The first milk bank in Estonia had its official opening in the capital city Tallinn at the East Tallinn Central Hospital on the 5th May 2010. This came about as the result of two years hard work and a collaboration with the Göteborg Milkbank in Sweden. Estonia
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Finland
Here you will find, among other things, strategy, core narrative, action plans and personnel policy for Amager and Hvidovre Hospital. Finland
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First human milk bank in Croatia
The Human Milk Bank was a joint project of the Ministry of Health of the Republic of Croatia, the UNICEF office in Croatia, the Croatian Breastfeeding Support Group and University Hospital Centre Zagreb. The Heart Milk Bank and Milk Bank Scotland in Glasgow provided invaluable expertise, hospitality and guidance in the realization of the project by means of a professional visit. CROATIA
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Galdakao
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Granada
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Hradec Králové
The Kžití.cz website is operated by the Lactation League. The Lactation League is a non-profit organization whose main mission is to support, educate and promote breastfeeding. Czech Republic
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Human milk bank french association
Milk banks in France, which began to operate after the end of World War 2, have always been regulated by law. The regulations cover all aspects of the operation of the bank although some parts are for guidance only. Serological testing of donors is every 3 months. France
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Hvidovre
The milkbank at Hvidovre Hospital has a nationwide operation with a turnover of 5,000 liters. a year. Women who express at least 200 ml of milk a day, can provide milk for the milkbank. Denmark
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Hôpital Universitaire des Enfants Reine Fabiola
Belgium
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Kepler University Hospital, Campus Neuromed, Wagner-Jauregg-Weg, Linz, Austria
Upper Austria
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Klinik Floridsdorf Milk Bank
The Vienna Health Association is Austria's largest healthcare provider and the backbone of the city of Vienna's health care system. 30,000 employees work in 8 clinics and 9 nursing homes as well as the Ybbs therapy center to ensure that the residents of the federal capital receive the best possible medical, nursing and therapeutic care around the clock. Austria
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Madrid
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Madrid
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Medical University Innsbruck
BELGIUM
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Medical University of Graz, Auenbruggerplatz, Graz, Austria
The Medical University of Graz in Austria had its beginnings in 1863, when Emperor Franz Josef founded the faculty of medicine at the Karl Franzens-University of Graz. However, it was not until 2004 that the faculty became an independent university, opening as the Centre for Medical Research with a library and Learning Centre. At the same time, a Nursing Science programme was launched. Austria
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Medical University of Vienna Milk Bank
MedUni Vienna is not only the largest medical organisation in Austria, it is also one of the most important top-level research institutions in Europe and provides Europe’s largest hospital, the AKH in Vienna, with all of its medical staff. Austria
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Merida
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Most
The Kžití.cz website is operated by the Lactation League. The Lactation League is a non-profit organization whose main mission is to support, educate and promote breastfeeding. Czech Republic
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Palma de Malorca
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Paracelsus Medical University, Strubergasse, Salzburg, Austria
The Paracelsus Medical University (PMU) is an institution organised as a private foundation with locations in Salzburg (since 2002) and Nuremberg (since 2014). With 21 university institutes, three research centres and eight research programmes in Salzburg it was possible to build – together with the Salzburg University Hospitals and the Nuremberg Hospital – a firstclass educational offer and excellent research. Salzburg
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Praha –ÚPMD
The Kžití.cz website is operated by the Lactation League. The Lactation League is a non-profit organization whose main mission is to support, educate and promote breastfeeding. Czech Republic
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Santander Santiago
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Sevilla
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Styria - Hospital Leoben
Austria
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University Hospital St.Pölten
With more than 3,500 students, the St. Pölten University of Applied Sciences is a key player in the Austrian higher education sector and one of the most important employers in the region. Our university distinguishes itself through its future-oriented and steadily growing number of study programmes, a strong interdisciplinary collaboration and its research focus. Lower Austria
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Valencia
ABOUT US A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Vigo
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Villadolid
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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Zaragoza
A milk bank collects, analyzes, processes and distributes breast milk donated altruistically by women who breastfeed their own children. Current available scientific evidence supports the use of donated human or breast milk for very preterm or sick newborns when their own mother's milk is not available or insufficient. Spain
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České Budějovice
promotion of breastfeeding in the Czech Republic, teaching medical staff in management, breastfeeding, so-called lactation specialists, consulting and advisory activities for breastfeeding women and health professionals, training of lactation consultants from the ranks of health professionals and mothers, operation of the Lactation Center with the National Breastfeeding Line, Czech Republic
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Lodging
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Barnes Lodge
ST. LOUIS, MISSOURI: Free Lodging United States
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Fisher House Foundation
UNITED STATES. Housing for Military and Veteran Families During the Illness/Treatment of a Loved One United States
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Haven House
ST. LOUIS, MISSOURI. Special Lodging for those traveling to St. Louis for medical care. United States
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Hospitality Homes
BOSTON, MASSACHUSETTS. Free Lodging United States
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Hospitality Homes
BOSTON, MASSACHUSETTS. Free Lodging United States
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MedStay
NORTH CAROLINA. Low Rates for Local Hotels United States
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Rest Easy Assistance at Dartmouth Hitchcock Medical Center
LEBANON, NEW HAMPSHIRE. Low Rates for Local Hotels United States
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Rest Easy Assistance at Dartmouth Hitchcock Medical Center
LEBANON, NEW HAMPSHIRE. Low Rates for Local Hotels United States
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Ronald McDonald House Charities
INTERNATIONAL. Low-cost lodging for families undergoing treatment at a local hospital. United States
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NAPA CENTER GRANT LIST
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Alternatives in Motion
To enhance independence through access to mobility equipment US
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Assistive Technology Fund
The mission of the Association of Blind Citizens (ABC) is to advance relevant causes, increase opportunities in education, employment, cultural, recreational and other life activities, as well as enhance the social, political, and economic well-being for all people who are blind or visually impaired. US
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Bright Steps Forward
Bright Steps Forward provides funding for intensive pediatric therapy to financially disadvantaged children with neurological disorders such as cerebral palsy, disabilities of prematurity, autism, and other congenital or acquired conditions that affect their physical functioning. US
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Community Block Grants
UNITED STATES.Identify individuals with severe physical disabilities whose disabilities leave them physically unable to use a computer through normal means US
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Difference Needz Foundation
Difference Needz Foundation provides special needs individuals, families and organizations that support them with money to purchase medical equipment, therapy devices, adaptive toys and/or services. US
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Disabled Children’s Relief Fund
Trusted voice on hearing health care for product innovation, public policy, patient safety and education. US
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Down Syndrome
Mark’s Money provides financial assistance to those with Down Syndrome or other developmental disabilities to improve quality of life by meeting their daily living, employment, medical, residential, or social needs. US
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First Hand Foundation
First Hand Foundation provides funds to families with limited incomes for medical/psychiatric services, vehicle modification, transportation, or items not covered by insurance. US
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Fund it Forward
Our Mission is to ease the burdens of families with children with special needs by raising money for adaptive equipment not covered by health insurance US
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Gia Nicole Angel Foundation
Gia Nicole Angel Foundation enhances the daily functioning of a child with special needs and his/her family by awarding assistance through the purchase of a specific item or items. US
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Kids on the Go Program
Variety: Kids on the Go Program provides funding for walkers, wheelchairs, specially-designed adaptive bikes, strollers, prosthetic limbs, and other devices to children with disabilities. US
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Miracle-Ear Foundation
Miracle-Ear Foundation provides no-cost hearing aids and hearing support services to children whose families have significantly limited incomes. US
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MIRA Foundation
MIRA Foundation provides guide dogs for eligible blind children between the ages of 11-17, free of charge. US
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Seedlings Braille Book for Children
Seedlings Braille Book for Children – Blind children in the US can receive two free braille books per year. US
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Special Kids Fund
Special Kids Fund donates handicapped wheelchair vans to families in need. US
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The Chand Plan Foundation
The Chanda Plan Foundation provides financial grants for integrative therapies to those with a physical disability. US
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The Kiddie Pool
Adaptivemall.com – The Kiddie Pool is a program to help families fundraise for special adaptive equipment. A custom webpage is created, with a picture and story of your child, where friends and family can visit to make donations. US
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The LENN Foundation
The LENN Foundation is a nonprofit helping children with cerebral palsy by providing financial relief for medical needs not covered by insurance. “Our goal is to give them a better quality of life they deserve.” US
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The MORGAN Project
The MORGAN Project provides resources, gently used disability equipment and small grants. US
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The Wheel to Walk Foundation
The Wheel to Walk Foundation is a non-profit organization that helps children and young adults (under 21 years old) with disabilities obtain medical equipment or services that are not provided by their insurance companies. Purchasing items such as shower chairs, therapy bikes, special beds, communication devices, speech therapy, etc. US
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Travis Roy Foundation
Travis Roy Foundation provides grant funds to modify vans and purchase wheelchairs, computers, ramps, shower chairs, and other adaptive equipment to help paraplegics and quadriplegics live their lives. US
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National Respite Network
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Agape Respite Care Home health care service
Agape Respite Care is committed to providing care and support services across the life span for persons with physical and intellectual disabilities to enable them to remain in their chosen community. US
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Agency for Integrated Care
AIC aims to create a vibrant care community for our people to live well and age gracefully. AIC coordinates and supports efforts in integrating care to achieve the best care outcomes for our clients. Singapore
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Alabama Lifespan Respite
Alabama Lifespan Respite Resource Network® (Alabama Respite) is a statewide program of United Cerebral Palsy of Huntsville and Tennessee Valley, Inc. (UCP Huntsville). Our statewide programs and services include: Respite reimbursement services (planned and emergency); Free online/onsite caregiver education opportunities, including quarterly respite clinics, co-hosted events with caregiver agency partners, and virtual reality experiences; Caregiver respite awareness, including presentations and exhibits at conferences and community events, as well as lunch and learns with groups, organizations, churches, and agencies that serve family caregivers; Caregiving Wellness Initiative supports, including free mental health counseling stipends, monthly caregiver support meetings, one-on-one Care Chats, and more; Respite resource information and referrals for caregivers; Statewide calendar of caregiver education opportunities and events; Monthly caregiver newsletter; Technical assistance for startup or expansion of community-based respite services; and State, local, and federal advocacy. US
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Carers WA
Carers WA is the peak body that represents the needs and interests of carers in Western Australia. We work to achieve an improved quality of life for family carers in our state. Australia
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Centacare Catholic Family Services
At Centacare Catholic Family Services, we believe that everyone has the right to be treated with respect and dignity. As the official community service agency of the Catholic Archdiocese of Adelaide, we deliver responsive, flexible and effective services to the South Australian community without regard to religion, race, culture, sexuality, gender identity, or economic circumstance. Australia
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Center For Respite Care
The mission of the Center for Respite Care is to provide quality, holistic medical care to people experiencing homelessness who need a safe place to heal, while assisting them in breaking the cycle of homelessness. US
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Family Caregiver Alliance
For more than 40 years, FCA has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers. US
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FRIENDS National Center for CBCAP
FRIENDS National Center for Community-Based Child Abuse Prevention (CBCAP) is a service of the U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau. US
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Illinois Life Span
Illinois Life Span (ILS) is a program of The Arc of Illinois – a statewide advocacy organization committed to empowering people with disabilities to achieve full participation in community life through informed choices. US
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Illinois Respite Coalition
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to advocating support for families by ensuring access to quality respite services for the residents of Illinois. The IRC is dedicated to spreading the awareness of lifespan respite for caregivers of individuals with special needs. US
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Irish Foster Care Association
The Irish Foster Care Association is the national organisation that supports foster families and the wider fostering community. We advance and promote best practice in foster care through support, learning and advocacy. We believe in a society where the importance of fostering is recognised, valued and supported. Ireland
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Lifespan Respite
Lifespan Respite Washington (LRW) began in 2002 as a statewide coalition known as the Respite & Crisis Care Coalition of Washington (RCCCWA). In 2010, RCCCWA received its first federal Lifespan Respite Grant to expand the program and to pursue sustainability. US
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Milestones Autism Resources
Milestones Autism Resources improves the lives of individuals on the autism spectrum by educating, coaching and connecting the autism community with evidence-based information. US
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NAMI Non-profit organization
NAMI provides advocacy, education, support and public awareness so that all individuals and families affected by mental illness can build better lives. US
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Parents Helping Parents
Parents Helping Parents will empower you at every stage of your child’s life, from birth through adulthood. Together, we will create a plan that will help you, your child, and your entire family thrive! US
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Rebab Group
The Rehab Group is a charity that provides services for over 20,000 adults and children, and champions the value of diversity and inclusion for people with disabilities or disadvantage in their communities throughout Ireland and the UK. Ireland
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Respite Care Association of Wisconsin
To promote, support, and expand quality, statewide respite care across the lifespan. Promote by initiating, sponsoring, and promoting educational programs, collaborating with other subject matter experts to increase outreach and opportunities for respite providers and primary caregivers. Support through the utilization of our Respite Care Certification Program & Wisconsin Respite Care Registry, Caregiver Respite Grant Program, Group Respite Grant program, and our CORE Grant Program. US
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Rewarding Work Resources Inc
Rewarding Work provides an accessible and easy-to-use online directory and job board designed to help individuals and families find and hire caregivers. Established as a nonprofit in 2004, Rewarding Work was the first web-based matching service directory in the nation to focus exclusively on assisting people of all ages with disabilities. That mission continues today, connecting job candidates available to support elders, and children and adults with disabilities—at home or in the community. US
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Rise Network
Rise has been working with communities for more than 35 years. We provide choices for more than 3000 people from all walks of life. These include young people at risk, those experiencing mental health issues, people with disability, our carers and older people. Australia
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South Carolina Respite Coalition
The mission of the SC Respite Coalition is to expand quality respite opportunities in South Carolina throughout the lifespan for South Carolina families who have a member with special needs. US
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YAI - Ridgeway Ave
YAI was launched in February of 1957 out of a small school in Brooklyn, New York. Initially staffed by Co-Founders Bert MacLeech and Pearl Maze MacLeech alone, their pilot program served just seven people. According to Bert, from its very beginning YAI has been dedicated to providing innovative services for the I/DD (intellectual and/or developmental disabilities) community. MacLeech envisioned a “total life adjustment approach, emphasizing personal growth, social responsibility, employment goals, and the development of independence for the individual.” US
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YAI Long Island Employment Services
YAI was launched in February of 1957 out of a small school in Brooklyn, New York. Initially staffed by Co-Founders Bert MacLeech and Pearl Maze MacLeech alone, their pilot program served just seven people. According to Bert, from its very beginning YAI has been dedicated to providing innovative services for the I/DD (intellectual and/or developmental disabilities) community. MacLeech envisioned a “total life adjustment approach, emphasizing personal growth, social responsibility, employment goals, and the development of independence for the individual.” At a time when institutional living was the norm for people with I/DD, this vision was nothing short of revolutionary.
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NHS Respite Resources (UK health system) A
NHS RESPITE Resources (UK Health System) B
NHS RESPITE Resources (UK Health System) C
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Barking and Dagenham London Borough Council
Barking and Dagenham Council Care & Support website UK
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Bath and North East Somerset Council
Bath and NE Somerset Council adult social care service website UK
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Bedford Borough Council
Bedford Council Help for Adults website UK
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Birmingham City Council
Birmingham Council "My Care" adult social services website UK
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Birmingham City Council
Birmingham Council "My Care" adult social services website UK
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Blackpool Borough Council
Blackpool Council adult social care services website UK
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Bolton Metropolitan Borough Council
Bolton Council adult social care services website UK
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Borough of Poole
Poole Council adult social care services website UK
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Bournemouth Borough Council
Bournemouth Council adult social care website UK
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Bracknell Forest Council
Bracknell Forest Council adult social care services website UK
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Brighton and Hove City Council
Brighton and Hove Council adult social services Access Point website UK
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Brighton and Hove City Council
Brighton and Hove Council adult social services Access Point website UK
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Bury Metropolitan Borough Council
Bury Council care and health website UK
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Central Bedfordshire Council
Central Bedfordshire Adult Social Care Services website UK
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Cheshire West and Chester Council
Cheshire West and Chester Council Adult Support Services website UK
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Cornwall Council
Cornwall Council health and social care website UK
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Coventry City Council
Coventry Council health and social care website UK
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Cumbria County Council
Cumbria Council adult social care website UK
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Derby City Council
Derby Council adult social care website UK
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Devon County Council
Devon Council social care and health website UK
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East Sussex County Council
East Sussex Council adult social care website UK
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East Sussex County Council
East Sussex Council adult social care website UK
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Gateshead Metropolitan Borough Council
Gateshead Council adult social care services website UK
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Gloucestershire County Council
Gloucestershire Council adult social care services website UK
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Hampshire County Council
Hampshire Council adult social care website UK
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Hartlepool Borough Council
Hartlepool Council adult social care website UK
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Herefordshire Council
Hereford Council adult social care website UK
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Hertfordshire County Council
Hertfordshire Council adult social care website UK
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Knowsley Metropolitan Borough Council
Knowsley Council adult social care website UK
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Leicester City Council
Leicester Council health and social care website UK
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Leicestershire County Council
Leicestershire Council adult social care and health website UK
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Lincolnshire County Council
Lincolnshire Council adult social care services website UK
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Liverpool City Council
Liverpool Council adult social care website UK
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London Borough of Brent
Brent Council adult social care services website UK