Preemie Directory
Whether you are looking for a support group or general preemie-related resources, chances are that our global Preemie Directory has it.
To see a full listing, simply click on the “arrowed” icon on the left, then click “All Items.”
Is your organization listed here? Need to make changes? Please click here to fill out our form.
Advocacy
-
Cerebral Palsy Alliance
Cerebral Palsy Alliance is a non-profit that provides services to thousands of people with a disability and their families. Cerebral palsy (CP) is a physical disability that affects the way that a person moves. Australia
Loading... -
The Smallest Things Charity
Welcome to The Smallest Things, a registered charity promoting the good health of premature babies and their families.
Loading...
Benefits
-
Children's Health Insurance Program (CHIP)
Learn about free/low-cost health & dental coverage for children through Medicaid & CHIP for qualified children and help spread the word. US
Loading... -
Medicaid
The Center for Medicaid and CHIP Services (CMCS) is one of six centers within the Centers for Medicare & Medicaid Services, an agency of the U.S. Department of Health and Human Services (HHS). CMCS serves as the focal point for all national program policies and operations related to Medicaid and the Children's Health Insurance Program (CHIP). US
Loading...
Bereavement
-
AgapeCare Cradle
UNITED STATES. Faith-based project to help families in the Wichita, Kansas area surrounding the loss of an infant in providing material support, planning support and emotional support. US
Loading... -
A Place to Remember
UNITED STATES. Uplifting support resources for those who have been touched by a crisis in pregnancy or the death of a baby. US
Loading... -
Center for Loss in Multiple Birth (CLIMB), Inc.
UNITED STATES. Provides parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood. It is also to assist extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss. US
Loading... -
Ellie's Light
MINNESOTA. To keep Ellie’s Light shining by supporting families with children experiencing severe chronic, terminal or critical illnesses, and those who have recently experienced the sudden loss of a child. US
Loading... -
Faith's Lodge
UNITED STATES. Grief is your own personal journey. We provide a serene stop along the way. A place where those coping with the death or medically complex condition of a child can find hope and strength for the future. Not to forget; but to reflect. We warmly invite you to take a leap of faith. US
Loading... -
Heaven's Gain
UNITED STATES. Provides small burial caskets for miscarried, premature and early stillborn babies. US
Loading... -
Jalen's Gift Foundation
UNITED STATES. Provides financial assistance for memorial services, emotional grief support, informational resources on pregnancy and infant loss, and a memorial keepsake to the suffering families and to the hospitals. US
Loading... -
Memory JAR
UNITED STATES. Comforting Ideas for Grief, Funeral Planning, Anniversary Planning US
Loading... -
Molly Bears
UNITED STATES. Creates special bears for angel families to provide a positive and comforting impact for families enduring any form of infant loss. US
Loading... -
Now I Lay Me Down to Sleep
UNITED STATES. Non-profit providing access to photographers worldwide for families who have lost an infant. US
Loading... -
Perinatal Hospice and Palliative Care: Continuing Your Pregnancy
Perinatal hospice and palliative care is for families who continue their pregnancies with babies whose lives are expected to be brief. US
Loading... -
Remembering Our Babies - October 15th
UNITED STATES. Pregnancy and Infant Loss Remembrance Day is on October 15th each year for the community of grieving parents to come together and remember their beloved babies. US
Loading... -
Skyler's Gift Foundation
Grants for funerals for infants who have died due to premature birth as well as funding to research toward ending premature birth. US
Loading... -
The Beautiful Scar Project
UNITED STATES. The Beautiful Scar Project’s mission is to provide families grieving the death of their infant due to miscarriage, stillbirth, and neonatal death the tools to turn the loss of their much loved and desired baby into a beautiful scar. US
Loading...
Breastfeeding
-
Black Mothers Breastfeeding Association
UNITED STATES. To reduce racial inequities in breastfeeding support for African Americans by building foundational networks of support, and strengthening systems to overcome historical, societal and social barriers to breastfeeding success. US
Loading... -
Work. Pump. Repeat. by Jessica Shortall
UNITED STATES. Great book for helping mothers handle pumping breast milk while going back to work. US
Loading...
Child Development
-
A Sensory Life!
UNITED STATES. Free sensory resources and tools for understanding Your Child's Sensory Signals
Loading... -
Can Do Kiddo
UNITED STATES. To help you confidently + playfully give your kiddos the best start possible.
Loading... -
CerebralPalsySymptoms.com
UNITED STATES. To provide the public with accurate and up to date information on the many aspects of cerebral palsy and other birth injury complications.
Loading... -
Hands On As We Grow
UNITED STATES. To help parents create memorable childhoods, as stress and guilt-free as possible.
Loading... -
Lemon Lime Adventures
UNITED STATES. Developing a place where readers can find ideas, resources, and reassurance in the subjects I write about.
Loading... -
OT Plan
IRVINE, CALIFORNIA. To match the skills you want to promote, with the materials you have, to a detailed activity that will help you strengthen certain skills United States
Loading... -
Pathways
CHICAGO, ILLINOIS. To help improve children’s sensory, motor, and communication skills. United States
Loading... -
Pink Oatmeal
UNITED STATES. To find ideas on child development, play, and movement.
Loading... -
Sensational Kids
KILDARE TOWN, IRELAND.To be the leading provider of accessible and affordable developmental and educational services to help the 1 in 5 children with special educational needs to realise their potential. Ireland
Loading... -
Sensory Processing Disorder Parent Support
UNITED STATES. To share with others what I have learned from my own two children who have special needs and have been diagnosed with multiple diagnosis including Sensory Processing Disorder.
Loading... -
Sensory Smarts
UNITED STATES. To help parents of kids with Sensory Processing issues.
Loading... -
The Inspired Treehouse
UNITED STATES. Sharing information, tips, and strategies to help readers conquer the common developmental roadblocks that come up for kids.
Loading... -
The Sensory Spectrum
UNITED STATES. Resource for parents with Sensory Processing Disorder (SPD) kiddos.
Loading... -
Your Kids OT
AUSTRALIA. Website for parents, educators, therapists and anyone else interested in providing creative learning opportunities for kids. Australia
Loading...
Coalition
-
EFCNI
INTERNATIONAL. Led by Silke Mader, this organization has a membership that spans the far reaches of Europe's preemie support groups and together they provide a advocacy voice for newborns and their families. DE
Loading... -
Family Advocacy Network (National Perinatal Association)
UNITED STATES. Provides 1) a regular consulting call for groups supporting NICU parents, 2) a database of support groups, and 3) a regular conversation between NICU psychologists. US
Loading... -
Global Alliance to Prevent Prematurity & Stillbirth
INTERNATIONAL. A neonatologist and a pediatric infectious disease specialist at Seattle Children’s formed GAPPS to accelerate research into the o causes and mechanisms of preterm birth and stillbirth in order to reduce the impact on children, families, and the community. US
Loading... -
National Coalition for Infant Health (NCfIH)
UNITED STATES. Advocates on behalf of premature infants from birth to age two. NCfIH envisions safe, healthy infants whose families can access the information, care and treatment their babies need. US
Loading... -
NICU Parent Network
UNITED STATES. The NICU Parent Network represents organizations that provide support to parents of preemies. The Alliance is committed to helping it's members provide quality information, resources, and support efficiently and effectively for the families we serve. US
Loading...
Disability
-
Easter Seals
CHICAGO, ILLINOIS.To provide exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. United States
Loading... -
Genetic and Rare Diseases Information Center
GAITHERSBURG, MARYLAND. Provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish. United States
Loading... -
Genetics Home Reference
BETHESDA, MARYLAND. Provides consumer-friendly information about the effects of genetic variation on human health. United States
Loading... -
Global Genes Project
ALISO VIEJO, CALIFORNIA. To Eliminate the Challenges of Rare Disease. United States
Loading... -
IDEA 2004, Part C
UNITED STATES. To provide a "one-stop shop" for resources related to Part C of the Individuals with Disabilities Education Act (IDEA) and its implementing regulations, announced on September 6, 2011. United States
Loading... -
Orphanet
PARIS, FRANCE. To provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. France
Loading... -
Rare Genomics Institute
DOWNEY, CALIFORNIA. To help rare disease patients find hope for a cure. United States
Loading...
Disability Resources
-
Center for Parent Information and Resources
UNITED STATES. CPIR serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities. US
Loading... -
Disability.gov
UNITED STATES. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need. US
Loading... -
IRLU
UNITED STATES. Creates opportunities for independence for people with disabilities through research, education, and consultation. US
Loading... -
Job Accommodation Network (United States Department of Labor)
UNITED STATES. The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. US
Loading... -
Pacer Center
UNITED STATES. PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. US
Loading... -
The ARC
UNITED STATES. The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. US
Loading...
Early Childhood
-
Center for Early Learning and Literacy
MORGANTON, NORTH CAROLINA. To promote the adoption and sustained use of evidence-based early literacy learning practices. United States
Loading... -
Center for Parent Information and Resources
NEWARK, NEW JERSEY. Serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities. United States
Loading... -
Childcare Aware
ARLINGTON, VIRGINIA. To help families learn more about the elements of quality child care and how to locate programs in their communities. United States
Loading... -
Early Childhood Technical Assistance Center (ECTAC)
CHAPEL HILL, NORTH CAROLINA. Improving state systems, increasing implementation of effective practices, and enhancing child and family outcomes. United States
Loading... -
Head Start
UNITED STATES. To promote school readiness of children ages birth to 5 from low-income families by supporting their development in a comprehensive way. United States
Loading... -
Healthy Children (by the American Academy of Pediatrics)
ELK GROOVE VILLAGE, ILLINOIS. The only parenting website backed by 66,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. United States
Loading...
Financial
-
Bridges to Access (GlaxoSmithKline)
UNITED STATES. Offers Advair, Flonase, Flovent, Serevent and Ventolin HFA medicines to those who qualify. US
Loading... -
Compassionate Allowances via Social Security Administration
UNITED STATES.
Loading... -
Medicaid & CHIP
UNITED STATES. Government benefits program for public. United States
Loading... -
Medicaid Waivers
UNITED STATES. Listing of the various Medicaid waivers for each state in the United States. Also provides a nice history of Medicaid. Created by Complex Child Magazine a free digital magazine of articles related to raising a child with complex needs. US
Loading... -
Nestle Healthcare Nutrition Patient Assistance Programs
UNITED STATES. Provides financial help for specialty nutrition by Nestle for tube and oral feedings US
Loading... -
Pediatric Assistance Fund (Healthwell Foundation)
UNITED STATES. Provides grants for medical treatments. US
Loading... -
Supplemental Security Income (SSI)
UNITED STATES. Government benefits program for public. United States
Loading... -
Women, Infants & Children (WIC)
UNITED STATES. Government benefits program for public. United States
Loading...
HUMAN MILK BANKS
-
Arizona Human Milk Bank
The Arizona Human Milk Bank has applied and is a developing milk bank via the Human Milk Bank Association of North America. US
Loading... -
BC Women's Provincial Milk Bank
We screen milk donors, and collect and heat-treat (pasteurize) donated milk and distribute it to hospitals in BC. US
Loading... -
Bronson Mothers' Milk Bank
Our healthcare system serves patients and families throughout southwest Michigan and northern Indiana. Offering a full range of services from primary care to advanced critical care, our goal is to provide you with the right care, at the right time, in the right place. US
Loading... -
CHOP Mothers' Milk Bank
Children's Hospital of Philadelphia, the oldest hospital in the United States dedicated exclusively to pediatrics, strives to be the world leader in the advancement of healthcare for children by integrating excellent patient care, innovative research and quality professional education into all of its programs. US
Loading... -
Heart of America Mothers' Milk Bank
Saint Luke’s Health System includes 18 hospitals and campuses across the Kansas City region, home care and hospice, behavioral health care, dozens of physician practices, a life care senior living community, and more. Saint Luke’s offers: US
Loading... -
Henry Ford Allegiance Health Mothers’ Milk Bank
Henry Ford Allegiance Health, a 475-bed health system, has been serving Jackson County and its surrounding communities for more than 100 years.
Loading... -
Human Milk Repository of New Mexico
The Human Milk Repository of New Mexico is proud to announce their accreditation through the Human Milk Banking Association of North America (HMBANA). The Human Milk Repository of New Mexico is the FIRST and ONLY HMBANA mother's milk bank in New Mexico. US
Loading... -
Mid-Atlantic Mothers' Milk Bank
Mid-Atlantic Mothers’ Milk Bank is a non-profit organization that improves the health and survival of medically vulnerable infants by providing pasteurized donor breast milk. US
Loading... -
Minnesota Milk Bank for Babies
Our mission is to improve infant health outcomes by ensuring that medically vulnerable babies —in Minnesota and the Upper Midwest—have access to safely pasteurized life-giving human donor milk when mother’s milk is unavailable or in low supply.
Loading... -
Mother's Milk Bank of Iowa
Because decades of research have established that human milk is the perfect food for infants, the Mother's Milk Bank of Iowa collects, stores, and distributes human milk to those who need it. US
Loading... -
Mother's Milk Bank of South Carolina
Promoting the Health of South Carolina Babies by Providing Access to Safe, Pasteurized Donor Human Milk US
Loading... -
Mothers' Milk Bank
Our mission: to improve the quality of life for families, sick children and infants throughout our communities by providing support when and how they need it most. US
Loading... -
Mothers' Milk Bank
It’s Simple. It’s Safe. It’s the Best for Babies! Welcome to Mother’s Milk Bank of San Jose. We are here to help you: if you are a mother who wants to donate your extra breast milk to medically vulnerable infants, a parent in need of mothers’ milk for your child, a health practitioner looking to collaborate, if you are grieving the loss of a child, we are here to help you. US
Loading... -
Mothers' Milk Bank at Austin
Mothers' Milk at Bank Austin will be a leader in advancing the use of donor human milk to improve the quality of human life. US
Loading... -
Mothers' Milk Bank Northeast
Mothers’ Milk Bank Northeast, a nonprofit community milk bank accredited by the Human Milk Banking Association of North America (HMBANA), provides pasteurized donor human milk to babies in fragile health throughout the Northeastern United States. US
Loading... -
Mothers' Milk Bank of Alabama
The Mothers’ Milk Bank of Alabama is a non-profit organization that collects, processes, and facilitates the distribution of excess mothers’ milk to provide nourishment to babies in need and sick or premature infants to helps moms who can’t supply their own milk because of stress, medications, or other complications. The Mothers’ Milk Bank of Alabama is a member of the Human Milk Banking Association of North America (HMBANA). US
Loading... -
Mothers' Milk Bank of Louisiana
Ochsner will be a global medical and academic leader who will change and save lives. We will shape the future of healthcare through our integrated health system, fueled by the passion and strength of our diversified team of physicians and employees.
Loading... -
Mothers' Milk Bank of Mississippi
Mothers' Milk Bank of Mississippi, founded in 2010, is a member bank of the Human Milk Banking Association of North America (HMBANA). Our mission is to accept, pasteurize and dispense donor human milk to premature and ill infants in Mississippi by physician prescription and according to guidelines from the Human Milk Banking Association of North America (HMBANA). US
Loading... -
Mothers' Milk Bank of Montana
To collect, screen, pasteurize and distribute human donor milk to infants and children with medical needs. US
Loading... -
Mothers' Milk Bank of North Texas
We strive to improve the health and survival of infants through breastfeeding advocacy and the safe, equitable provision of pasteurized donor human milk. US
Loading... -
Mothers' Milk Bank of Tennessee
Mothers' Milk Bank of Tennessee is a non-profit human milk bank dedicated to providing donated breast milk to premature infants.
Loading... -
Mothers' Milk Bank of the Western Great Lakes
Mothers’ Milk Bank of the Western Great Lakes saves tiny lives by collecting, pasteurizing, and dispensing donor human milk to premature babies and pediatric patients.
Loading... -
Mothers’ Milk Bank of Florida
Our mission is to improve health and promote healing by collecting, processing, and distributing pasteurized donor human milk to vulnerable babies when milk from the baby’s own mother is not available. US
Loading... -
NorthernStar Mothers Milk Bank
NorthernStar Mothers Milk Bank is Canada's only community-based milk bank. Operating as a charitable organization, NorthernStar screens breastfeeding mothers, accepting donations of excess milk from approved donors to be pasteurized in our laboratory. Milk is then dispensed to sick babies in hospitals and at home. We believe, and science supports, that human milk is the best option for any baby and that all babies have the right to the life-saving nutrients of pasteurized donor human milk. US
Loading... -
Northwest Mothers Milk Bank
Our mission is to improve the health and survival of the Pacific Northwest’s most vulnerable infants.
Loading... -
OhioHealth Mothers' Milk Bank
OhioHealth is a nationally recognized, not-for-profit, charitable, healthcare outreach of the United Methodist Church. US
Loading... -
Oklahoma Mothers' Milk Bank
Our mission is to provide safe donor milk to preterm or ill babies in Oklahoma. US
Loading... -
Rogers Hixon Ontario Human Milk Bank
Located at Mount Sinai Hospital, The Rogers Hixon Ontario Human Milk Bank was launched in 2011 in partnership with The Hospital for Sick Children (SickKids) and Sunnybrook Health Sciences Centre. The Milk Bank collects donated breastmilk from lactating women, pasteurizes it, and distributes it by prescription to medically fragile babies in Neonatal Intensive Care Units across Ontario. US
Loading... -
The King's Daughters Milk Bank
Children's Hospital of The King's Daughters Health System will lead the region as the preferred provider of quality children's health services. US
Loading... -
The Milk Bank
Founded in 2005 as the Indiana Mothers’ Milk Bank, The Milk Bank was established to improve health outcomes for premature and ill infants, foster better health for children and decrease health care expenditures. US
Loading... -
The New York Milk Bank
The New York Milk Bank is dedicated to improving the health and survival of infants in need by providing them with safely pasteurized donor human milk when their mothers’ own milk is unavailable or insufficient. We are dedicated to ensuring the safety and quality of donor milk and to reducing health disparities in the use and distribution of donor milk. US
Loading... -
University of California Health Milk Bank
University of California Health Milk Bank is a non-profit human milk bank and an accredited member of the Human Milk Banking Association of North America (HMBANA) In 2010 Dr. Lisa Stellwagen, MD, FAAP and Dr. Jae Kim, MD started working on a plan for a milk bank that would partner with a local blood bank and utilize their internal delivery systems. As luck or fate would have it, in 2014, our philanthropic donors- Hannah and Zach Johnson had trouble getting help with breastfeeding issues. Frustrated with the lack of information and help they got, they set out to make some major changes for Southern California mothers! US
Loading... -
WakeMed Mothers' Milk Bank
Each year more than 10,000 babies are born prematurely in North Carolina. These fragile newborns need the best possible nutrition to grow and develop into healthy infants. Breast milk has life-saving antibodies that protect preemies, as well as full-term infants, against disease, illness and intestinal infections. US
Loading...
Lodging
-
Barnes Lodge
ST. LOUIS, MISSOURI: Free Lodging United States
Loading... -
Fisher House Foundation
UNITED STATES. Housing for Military and Veteran Families During the Illness/Treatment of a Loved One United States
Loading... -
Haven House
ST. LOUIS, MISSOURI. Special Lodging for those traveling to St. Louis for medical care. United States
Loading... -
Hospitality Homes
BOSTON, MASSACHUSETTS. Free Lodging United States
Loading... -
Hospitality Homes
BOSTON, MASSACHUSETTS. Free Lodging United States
Loading... -
MedStay
NORTH CAROLINA. Low Rates for Local Hotels United States
Loading... -
Rest Easy Assistance at Dartmouth Hitchcock Medical Center
LEBANON, NEW HAMPSHIRE. Low Rates for Local Hotels United States
Loading... -
Rest Easy Assistance at Dartmouth Hitchcock Medical Center
LEBANON, NEW HAMPSHIRE. Low Rates for Local Hotels United States
Loading... -
Ronald McDonald House Charities
INTERNATIONAL. Low-cost lodging for families undergoing treatment at a local hospital. United States
Loading...
NAPA CENTER GRANT LIST
-
Alternatives in Motion
To enhance independence through access to mobility equipment US
Loading... -
Assistive Technology Fund
The mission of the Association of Blind Citizens (ABC) is to advance relevant causes, increase opportunities in education, employment, cultural, recreational and other life activities, as well as enhance the social, political, and economic well-being for all people who are blind or visually impaired. US
Loading... -
Bright Steps Forward
Bright Steps Forward provides funding for intensive pediatric therapy to financially disadvantaged children with neurological disorders such as cerebral palsy, disabilities of prematurity, autism, and other congenital or acquired conditions that affect their physical functioning. US
Loading... -
Community Block Grants
UNITED STATES.Identify individuals with severe physical disabilities whose disabilities leave them physically unable to use a computer through normal means US
Loading... -
Difference Needz Foundation
Difference Needz Foundation provides special needs individuals, families and organizations that support them with money to purchase medical equipment, therapy devices, adaptive toys and/or services. US
Loading... -
Disabled Children’s Relief Fund
Trusted voice on hearing health care for product innovation, public policy, patient safety and education. US
Loading... -
Down Syndrome
Mark’s Money provides financial assistance to those with Down Syndrome or other developmental disabilities to improve quality of life by meeting their daily living, employment, medical, residential, or social needs. US
Loading... -
First Hand Foundation
First Hand Foundation provides funds to families with limited incomes for medical/psychiatric services, vehicle modification, transportation, or items not covered by insurance. US
Loading... -
Fund it Forward
Our Mission is to ease the burdens of families with children with special needs by raising money for adaptive equipment not covered by health insurance US
Loading... -
Gia Nicole Angel Foundation
Gia Nicole Angel Foundation enhances the daily functioning of a child with special needs and his/her family by awarding assistance through the purchase of a specific item or items. US
Loading... -
Kids on the Go Program
Variety: Kids on the Go Program provides funding for walkers, wheelchairs, specially-designed adaptive bikes, strollers, prosthetic limbs, and other devices to children with disabilities. US
Loading... -
Miracle-Ear Foundation
Miracle-Ear Foundation provides no-cost hearing aids and hearing support services to children whose families have significantly limited incomes. US
Loading... -
MIRA Foundation
MIRA Foundation provides guide dogs for eligible blind children between the ages of 11-17, free of charge. US
Loading... -
Seedlings Braille Book for Children
Seedlings Braille Book for Children – Blind children in the US can receive two free braille books per year. US
Loading... -
Special Kids Fund
Special Kids Fund donates handicapped wheelchair vans to families in need. US
Loading... -
The Chand Plan Foundation
The Chanda Plan Foundation provides financial grants for integrative therapies to those with a physical disability. US
Loading... -
The Kiddie Pool
Adaptivemall.com – The Kiddie Pool is a program to help families fundraise for special adaptive equipment. A custom webpage is created, with a picture and story of your child, where friends and family can visit to make donations. US
Loading... -
The LENN Foundation
The LENN Foundation is a nonprofit helping children with cerebral palsy by providing financial relief for medical needs not covered by insurance. “Our goal is to give them a better quality of life they deserve.” US
Loading... -
The MORGAN Project
The MORGAN Project provides resources, gently used disability equipment and small grants. US
Loading... -
The Wheel to Walk Foundation
The Wheel to Walk Foundation is a non-profit organization that helps children and young adults (under 21 years old) with disabilities obtain medical equipment or services that are not provided by their insurance companies. Purchasing items such as shower chairs, therapy bikes, special beds, communication devices, speech therapy, etc. US
Loading... -
Travis Roy Foundation
Travis Roy Foundation provides grant funds to modify vans and purchase wheelchairs, computers, ramps, shower chairs, and other adaptive equipment to help paraplegics and quadriplegics live their lives. US
Loading...
Organization
-
Alliance for Patient Access
UNITED STATES. AfPA is a national network of physicians with the shared mission of ensuring and protecting patient access to medical treatments and therapies, including prescription pharmaceuticals, biologics, and medical devices. AfPA accomplishes this mission through educating members and the public on policy priorities and training them to be an effective advocate. United States
Loading... -
Bee Mighty
UNITED STATES. Bee Mighty provides financial assistance to the parents of micro-preemies battling significant medical challenges with limited financial resources, enhancing the child’s development and quality of life. Bee Mighty was established so that families can focus on each other and concentrate on the development of their child without the added stress of financial ruin. United States
Loading... -
Bliss
UNITED KINGDOM. Originally set up as Baby Life Support Systems, the charity first focused on raising money for medical equipment for hospitals. Over the years Bliss has expanded to provide staff training, family support, perinatal care and now a new program, Bliss Nurses. United Kingdom
Loading... -
Brave Beginnings
UNITED STATES. Provides life-saving neonatal medical equipment to NICUs. United States
Loading... -
Caiden's Hope Foundation
UNITED STATES. The organization works directly with hospital social services to “families living in the NICU” with travel support in the form of gasoline, hotel accommodations, bus and rail accommodations, parking and food expenses. United States
Loading... -
Canadian NICU Support Foundation
CANADA. To build a national network of families, healthcare providers and researchers to support and encourage NICU families and NICU graduate families. Programs include: Blog with tips and personal anecdotes about parenting in the NICU/at home; Host family teas; Publish a monthly newsletter (email subscription and blogged); Daily Dose of Hope feature; Comfort Kits for tertiary new admissions to the NICU; A Daily Dose of Hope Encouragement Kits; Communty Play Groups. Canada
Loading... -
Capturing Hopes Photography
INTERNATIONAL. From her own personal experience of having a child who passed away at 6 months of age, Deneen Bryan saw the incredible need for professional photography at such tenuous time. With the encouragement of the Ronald McDonald House staff and her own family, Capturing Hopes Photography was born. United States
Loading... -
CP NOW
UNITED STATES. To optimize the health, wellness and participation of people with cerebral palsy and their families throughout the lifespan. US
Loading... -
Dandy-Walker Alliance, Inc.
INTERNATIONAL. Focus: Individuals and families affected by Dandy-Walker Syndrome, the most common malformation of the hindbrain region. Is doing intensive research with data and genetic respository. United States
Loading... -
Eli Collins Foundation
Loading... -
Embrace
INTERNATIONAL. Embrace was founded at Stanford University’s Institute of Design in 2008 when a group of graduate students were challenged to help families in the poorest regions of the world by designing an intervention (the Embrace Warmer) for neonatal hypothermia that cost less than 1% of the price of a $20,000 state- of-the-art incubator. United States
Loading... -
Emma's Footprints
NW INDIANA AND UNITED STATES. Care packages for NICU families,bereavement care packages,support for families after the loss of an infant,projects toward bringing awareness to premature birth and infant loss. United States
Loading... -
Families Blossoming
INTERNATIONAL. 1:1 Coaching (parents), group coaching, online coaching program, workshops, teleseminars and webinars. United States
Loading... -
Feeding Matters
UNITED STATES. Providing support to both families and medical professionals who are caring for infants and children with pediatric feeding struggles. United States
Loading... -
Feeding Tube Awareness Foundation
UNITED STATES. Association devoted to bringing awareness, education and support for families with a child on a feeding tube. United States
Loading... -
First Candle
INTERNATIONAL. Priority issues for the organization include eliminating stillbirth, Sudden Infant Death Syndrome (SIDS) and other Sudden Unexpected Infant Deaths (SUID) with research, education and advocacy. United States
Loading... -
Foundation for Premature Infants
INTERNATIONAL. To advocate for the right of all premature infants to be cared for in a developmentally supportive manner. United States
Loading... -
High Risk Hope
STATE AND LOCAL, TAMPA, FLORIDA. High Risk Hope reaches 1,200 new families per year with Bed Rest Baskets (for bed-rest) and NICU Napsacks (for families) filled with items to make the stay easier and the hope to bring home a healthy infant. United States
Loading... -
Human Milk Banking Association of North America
UNITED STATES & CANADA. To provide standards for all North American milk banks. The organization runs 16 milk banks throughout the United States and Canada. United States
Loading... -
Hydrocephalus Association
UNITED STATES. The organization is the largest private funder of research into new treatment options programs and surgical techniques. Focus is on families of preemies and seniors. United States
Loading... -
International Neonatal Consortium
INTERNATIONAL. A global collaboration formed to forge a predictable regulatory path for evaluating the safety and effectiveness of therapies for neonates. United Kingdom
Loading... -
Jackson Chance Foundation
CHICAGO, ILLINOIS. JCF in partnership with Ann & Robert H. Lurie Children’s Hospital of Chicago created the NICU Transportation Program which provides complimentary parking as well as transportation to all families, in each and every day their child is in the NICU. United States
Loading... -
Kindness Matters, Inc.
UNITED STATES. Bullying is the fear of every parent, preemie or not. Jacki James worked hard to help her 13-year old son, Peyton (a former preemie), manage endless teasing about his differences at school. In October 2014, he took his own life. His mother Jacki created Kindness Matters in his memory to create an alternative to anti-bullying campaigns to one of “pro-kindness.” United States
Loading... -
Mental Health America
UNITED STATES. Individuals can take a free, confidential, and anonymous mental health screeing at http://www.mhascreening.org They can also contact the MHA af liates to inquire about local programs and services such as support groups and referral services, peer support, trainings, and more. United States
Loading... -
National Association of Neonatal Therapists(NANT)
UNITED STATES. The focus is Neonatal OT, PT and SLPs and the premature and medically complex infants they serve. Programs include an annual national educational conference. United States
Loading... -
National Lekotek Center
UNITED STATES. Programs include: Individual Family Play Sessions; Toy Lending Libraries; Play Groups; Compuplay (computer-basedlearning); Professional Toy Lending; Training Services (parent and professional); www.AblePlay.org for ratings and reviews on current toys for children with special needs; Toy Industry Consultation & Services. United States
Loading... -
NEC Society
INTERNATIONAL. Families with premature infants and fragile infants who have been impacted by necrotizing enterocolitis (NEC) or at risk of being impacted by NEC. The society also strives to engage clinicians and researchers who are committed to combating NEC. United States
Loading... -
Newborn Hope
COLORADO. Provides resources for Colorado babies and families impacted by prematurity. US
Loading... -
NIDCAP Federation International
INTERNATIONAL. From her own experience with the complicated birth of her son, Heidelise Als, PhD, a psychologist at Boston Children’s Hospital and the Harvard Medical School, saw a void in the hospital systems’ nurturing of the baby, especially of those high risk for disabilities, and their families. She is the force behind the NIDCAP Federation International (NFI). United States
Loading... -
Now I Lay Me Down to Sleep
INTERNATIONAL. When Maddux Achilles Haggard was born on 2/4/05 with a life- threatening condition, his parents, Mike and Cheryl Haggard made the excruciating decision to remove him from life support. They asked photographer Sandy Puc' to take portraits of their son before and afterward so they could create a lasting legacy for the family. This inspired Cheryl and Sandy to begin the organization Now I Lay Me Down to Sleep. United States
Loading... -
Oley Foundation
Loading... -
Parents of Infants & Children with Kernicterus (PICK)
UNITED STATES. Preemies parents are quite familiar with jaundice as they watch their baby bathe in the incubator’s “bili lights” during the stay. For those that do not get the proper treatment, Kernicterus can create life-long damage and even death. PICK was formed to help raise awareness and support families that have been affected. United States
Loading... -
Parent to Parent USA
UNITED STATES. This organization brings together state Parent to Parent programs nationwide under one umbrella to help share best practices, resources and more for the betterment of families in need. United States
Loading... -
Pebbles of Hope
INTERNATIONAL. The Pebbles of Hope mission is to help preemies survive and thrive by leveraging media, technology, and community to provide education and training to parents and other caregivers outside of traditional health facilities. United States
Loading... -
Pediatric Hydrocephalus Foundation
UNITED STATES. Organization that raises awareness, fundraises for a cure and adovocates at all policy levels on behalf of families working through pediatric hydrocephalus. US
Loading... -
Sensory Processing Disorder Foundation
UNITED STATES. Improve the lives of children and adults with SPD and their families through research, education, and increased global awareness. The vision is a future in which every child with SPD is identified and treated by age 6. United States
Loading... -
Skyler's Gift
UNITED STATES. After the loss of their son, Skyler, a 24-weeker twin, Stephen and Tiffany Bowen learned of the heartache of preemie families who had difficulty in paying for funeral costs and had to opt for non-burial or mass cremation. Skyler’s Gift Foundation gives families their back their dignity and more. United States
Loading... -
So Precious
NHS FORTH VALLEY, SCOTLAND (MATERNITY, NEONATAL & PAEDIATRIC UNITS). After having critically ill babies, Alison Kilgour and her husband David along with fellow parent Lorna Blue wanted to help the units and therein the families. United Kingdom
Loading... -
Special Kids, Special Care
UNITED STATES. Organization serving Colorado to address the many gaps for special needs families and to educate their healthcare providers. US
Loading... -
Team Grayson
INTERNATIONAL. To raise awareness about Necrotizing Enterocolitis (NEC) and to end it. United States
Loading... -
The Preemie Project
IOWA. The Preemie Project seeks to provide comfort and support to critically ill infants and their families in Newborn Intensive Care Units in Iowa. We achieve our mission through the support of a devoted group of local and national volunteers. United States
Loading... -
Tiny Feet Foundation
Loading... -
Toby's Shower for Babies
4 HOSPITALS IN NEBRASKA & WYOMING. Baskets of items for families as well as mentor program. United States
Loading... -
Triple Heart Foundation
Loading... -
United States Institute for Kangaroo Care
INTERNATIONAL. The organization is focused on giving full-term and pre- term infants worldwide the immense benefits of Kangaroo Care. Provides an annual intensive certification course on which is a 2.5 day course that covers all the science, implementation, knowledge, skills, and application particulars needed to provide safe skin-to- skin contact to all newborns and their parents. United States
Loading... -
Unspoken Grief
INTERNATIONAL. Unspoken Grief provides a website of support for anyone touched directly (e.g. moms, dads) or indirectly (i.e. doctors, friends, siblings) by perinatal grief due to miscarriage, stillbirth or neonatal death. Canada
Loading... -
Vision Rearch ROPARD Foundation
UNITED STATES. This organization is the merger of two established eye research 501(c) 3 philanthropic groups that will lead to a new level of patient information and to funding clinically relevant research. To that end, VRRF seeks to o bring “hope for vision” for children and adults. United States
Loading...
Prescriptions
-
Merck Helps Program
UNITED STATES. Provides prescription assistance programs US
Loading... -
Needy Meds
UNITED STATES. Offers a database of free or at low cost medications for people who are uninsured or low income. US
Loading... -
PAN Foundation
UNITED STATES. Provides prescription assistance with Synagis (palivizumab) injections to prevent against severe Respiratory Syncytial Virus (RSV). US
Loading... -
Partnership for Prescription Assistance
UNITED STATES. US
Loading... -
Partnership for Prescription Assistance (List of Participating Programs)
UNITED STATES. US
Loading...
Products
-
Advance My Baby by Paula Tarver, OTR/L & Jeanne Martin, OTR/L
UNITED STATES. Occupational Therapists Tarver and Martin have created a colorful, clear and friendly guide to provide parents of premature infants with exercises to help advance development. US
Loading... -
A Giraffe Called Neo (Alison Schleef)
INTERNATIONAL. Postpartum Depression or Post Natal Depression (PPD or PND) is something that Schleef describes with refreshing honesty as she relates the story of her son’s traumatic birth at 28 weeks gestation, his and her transport to another hospital and a three month NICU stay that left this mother, naturally, alone and scared. This should be required reading in every NICU, parent and professional alike.
Loading... -
Bambo Nature Abena Diapers
UNITED STATES. All natural, eco-friendly diapers. US
Loading... -
Beyond the Laces (Book)
Loading... -
Come Home Soon Baby Brother! Come Home Soon Baby Sister!
UNITED STATES. Products for Big Brothers and Sisters with Siblings in the NICU US
Loading... -
Firefly Upsee
INTERNATIONAL. Firefly Upsee product line provides children with disabilities the ability to walk and move. UK
Loading... -
For the Love of Babies (book by Sue Hall, MD)
UNITED STATES. Book by Sue Hall, MD that details the stories of babies in the NICU and why it is important that we properly support families in order to better support the baby. US
Loading... -
From Hope to Joy by Jennifer Degl
INTERNATIONAL. Author and Mom Jennifer Degl brilliantly details the harrowing world of bed rest and one family’s desperation to keep their baby girl alive despite the odds. US
Loading... -
Girl in Glass (Deanna Fei)
INTERNATIONAL. Imagine ending up in the media spotlight over a CEO’s crass comments about to your “distressed baby’s” medical bills being the reason for AOL’s employee benefits restructuring. Fei tells her family’s side of the story from traumatic birth to NICU stay to homecoming and a CEO’s poor excuse for the challenged bottom line US
Loading... -
Go Preemies! Book
INTERNATIONAL. Go Preemies is the book every parent will want to have on hand for a long, long time as its highlighting of famous preemies succeeding despite the odds will resonate for a lifetime. United States
Loading... -
Grayson: A Documentary
INTERNATIONAL. Grayson takes the viewer into the world of the Kapferer family and the life of their premature baby boy, Grayson, who died after birth at 34 weeks gestation and developing Nectrotizing Enterocolitis (NEC). US
Loading... -
Healing of the 1 lb. Baby
INTERNATIONAL. There is no shortage of Preemie Mom memoirs on the market but this one has a unique flavor combined with honesty in a new way. As the mother to Elouisa, a 1-pound baby born to author Marie Delanote, there is a strong spiritual note in the realm of chakras and visual healing methods. The story is compelling and takes the preemie experience to a new level. UK
Loading... -
Helping Your Child with Extremely Picky Eating by Katja Rowell & Jenny McGlothlin
INTERNATIONAL. In this book, Katja Rowell and Jenny McGlothlin outline tips, tools, and coping mechanisms to help parents draw out the food lover that can present itself in any child. While some of the techniques described in the book are novel, there is nothing earth shattering or overly difficult for a frustrated parent to implement. US
Loading... -
Hold Your Prem (Book)
UNITED STATES. Book that provides great information on Kangaroo Care and more. Great for parents and professionals alike. Africa
Loading... -
It's A Preemie Thing
INTERNATIONAL. Sassy sayings on clothing items that help to lighten the preemie experience and bring a community of NICU families together. The company has provided team shirts annually at March for Babies walks and more. United States
Loading... -
Kozie Clothes
INTERNATIONAL. Who says preemies going home on g-tubes can’t be healthy, safe and also be fashionistas? US
Loading... -
Little Lotus
Loading... -
little man
INTERNATIONAL. Nicole Conn's international award-winning documentary of her 1 lb. son's NICU stay after being born at 26 weeks. Same film that was on the Showtime Channel for 5 years. United States
Loading... -
little man (professionals edition)
INTERNATIONAL. Professional sector training version of Nicole Conn's international award-winning documentary of her 1 lb. son's NICU stay after being born at 26 weeks. Same film that was on the Showtime Channel for 5 years. United States
Loading... -
Married with Special Needs Children
INTERNATIONAL. Great book for couples working through life with a special needs child. United States
Loading... -
MATT: The Film
INTERNATIONAL. The short film is centered around Matt (who had been born 3 months premature at 1.5 lbs. and had suffered brain trauma), is now a senior at Santa Monica High School and becomes a member of the varsity football team and later the basketball team. US
Loading... -
Medolac
INTERNATIONAL. Product company providing donor milk and human milk fortifier. US
Loading... -
Miracle Baby Shirts
INTERNATIONAL. Tink & Key, a website born out of a NICU Mom’s interest to celebrate miracles, has a full line of tees, onesies and more with a variety of sayings and each with great style. Each item is made with American Apparel Clothing (sweat-shop free). US
Loading... -
My Bubble Wrap Girl - Sofia's Story by Becky Meechan
INTERNATIONAL. Becky Meechan tells her story of her “Poppet”, a 24-weeker preemie that had numerous ups and downs in the NICU. UK
Loading... -
NICU Art Crib Cards
INTERNATIONAL. EVERYtinyTHING has come up with a set of classy and NICU friendly art work. Full of inspirational sayings and preemie-friendly graphics, each two-sided piece will bring a smile to both NICU staffer and parent. US
Loading... -
No Time to Quit
UNITED STATES. No Time to Quit: Life in a Broken Package is the biography (as told by her daughter Gail Lipe) of Gail Johnson, a surviving twin born at 6 months gestation in 1932 and later diagnosed with Cerebral Palsy. Page after page is filled with the courage and tenacity of a woman focused on living life to the fullest despite being disabled. US
Loading... -
Nurtured By Design
INTERNATIONAL. Product company that is the home of the Zaky, the Kangaroo Zak and more. US
Loading... -
Once in a Lullaby (Cheryl Campbell and Various Artists)
INTERNATIONAL. Cheryl Campbell, a classically trained soprano, music teacher and preemie mother crowd- funded a CD that could be donated to families in the Mount Sinai NICU. With 16 soothing classical pieces mixed with pieces of a lullaby quality (like “Over the Rainbow”), Campbell has done a superb job. Grand- parents, families, and friends will find this a perfect gift for preemies in the NICU. Canada
Loading... -
Once Upon a Preemie (Book)
Loading... -
On Coming Alive Journal (Book/Journal)
Loading... -
Owlet Vitals Baby Monitor
INTERNATIONAL. Didn’t get discharged from the NICU with a monitor and freaked out? The Owlet Baby Vitals Monitor is a consumer-grade product that can help. US
Loading... -
Pacifier Activated Lullaby - Powers Medical Devices, LLC
UNITED STATES. Product that stimulates non-nutritive sucking (NNS) and organized breath- suck-swallow activity through a pressure transducer system that provides individual lullaby/voice feedback to a correct “suck” technique. US
Loading... -
Parenting Children with Special Medical Needs
UNITED STATES. Love and Logic’s special series on special medical needs provides solid tips to get there. And it works. US
Loading... -
Peek-A-Boo-ICU
Products for NICU families including special charm bracelets to celebrate NICU milestones. United States
Loading... -
preemie by Kasey Mathews (Book)
UNITED STATES. Kasey Mathew's biography of her daughter's premature birth, NICU stay and homecoming and beyond and its profound affect on her own mental health. Moms should read this! United States
Loading... -
Preemie Clothes by Ranenko
INTERNATIONAL. Preemie’s clothing from onesies to hats to pants are unique and perfectly tailored for the NICU. They are soft and soothing for fragile skin and also accessible for various tubes and wires. UK
Loading... -
Preemie Voices
INTERNATIONAL. Preemie Voices is like looking into a crystal ball and seeing the future. Told in the voices of 41 former micro-preemies now in their 30s, each talks about their lives and give intimate details surrounding their challenges as well as their achievements. CA
Loading... -
Prolacta
INTERNATIONAL. In addition to respecting what human milk does naturally, we also believe in advancing the science of human milk. Established in 1999, we created the first and only human milk-based neonatal nutritional fortifiers made from 100% donor breastmilk, rather than cows milk. Our nutritional products have proven benefits when used as part of an exclusive human milk diet, such as improved feeding tolerance, improved growth rates, reduction in co-morbidities, shorter NICU stays, and reduced hospital costs. US
Loading... -
Raising A Happy Healthy Eater
UNITED STATES. Helping picky eaters become happy healthy eaters. US
Loading... -
SafeBaby
UNITED STATES. Product company that provides breast milk tracking, donor milk tracking and breast milk nutrition testing. US
Loading... -
Sensory Magnets
ISRAEL. Sensory Treat’s owners, Hadas & Oren Steinberg created SensoryMagnets based upon the experiences of their own children who required seven years of sensory therapies. The magnets are illustrated sensory activities that go across the areas of deep pres- sure, heavy work, jumping, vestibular and oral needs. Israel
Loading... -
The Baby Signing Book
INTERNATIONAL. As the mother of two signing children and Founder of WeeHands, Sara Bingham has authored a baby sign language book that is taking the parenting world by storm. In it, Bingham provides easy-to-use steps and tips to make teaching your infant/child signing simple and straightforward. Canada
Loading... -
The Boy Who Could Run But Not Walk by Karen Pape, MD
INTERNATIONAL. Children with brain inujury are not a lost cause. Neuroplasticty exists and recovery is possible. Canada
Loading... -
The Littlest Peanut by Shannan Wilson (book)
UNITED STATES. A baby record book especially for families with a preemie. Perfect for the NICU stay and afterward. United States
Loading... -
The Preemie Parent's Survival Guide to the NICU (Book)
INTERNATIONAL. A critically-acclaimed guide for preemie families working through the NICU stay. Written by Deb Discenza (Preemie Magazine) and Nicole Conn (little man). Four color, paperback. 192 pages. United States
Loading... -
Water Wipes
CO. LOUTH, IRELAND. WaterWipes are the only wipes made with just two ingredients water, specially purified and softened, and a tiny drop of grapefruit seed extract. Ireland
Loading...
Professional
-
99nicu
SWEDEN. The web community for staff in neonatal medicine Sweden
Loading... -
American Cleft Palate-Craniofacial Association
CHAPEL HILL, NORTH CAROLINA. To optimize interdisciplinary care and outcomes for individuals with oral cleft and craniofacial conditions through education, research, advocacy, and improved team care. United States
Loading... -
American College of Physicians
PHILADELPHIA, PENNSYLVANIA. To enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine. United States
Loading... -
American Medical Resources Foundation (AMRF)
BROCKTON, MASSACHUSETTS. To improve health care around the world by equipping hospitals and health centers that serve the poor in developing nations with medical equipment and related supplies. United States
Loading... -
American Speech-Language-Hearing Association
ROCKVILLE, MARYLAND. Empowering and supporting audiologists, speech-language pathologists, and speech, language, and hearing scientists through: advancing science,setting standards,fostering excellence in professional practice, and advocating for members and those they serve. United States
Loading... -
Baby's First Test
To educate parents, family members, health professionals, industry representatives, and other members of the public about the newborn screening system.
Loading... -
Best Beginnings
VALE ROYAL, LONDON. Supports parents in giving their children the best start in life. United Kingdom
Loading... -
BeSweet2Babies Neonatal Pain Videos in Multi-Languages
OTTAWA, ONTARIO. Help kids and their families be the healthiest Canada
Loading... -
BioMedSearch.com
ELLICOTT CITY, MARYLAND. To provide free access to a massive collection of authoritative documents relating to the biomedical field. United States
Loading... -
British Association of Perinatal Medicine
THEOBALDS ROAD, LONDON. To support newborn babies and their families by providing services that help all those involved in perinatal practice to improve the standards of perinatal care in the British Isles. United Kingdom
Loading... -
Caring Essentials Collaborative, Inc
DORCHESTER CENTER, MASSACHUSETTS. Measurably transform the experience of care for hospitalized infants, their families, and the healthcare professionals who serve them to reflect a trauma-informed care paradigm by providing evidence-based education, coaching and mentoring. United States
Loading... -
Child-Bright Network
MONTREAL, QUEBEC. To achieve brighter futures for children with brain-based developmental disabilities and their families across their lifespan by creating novel interventions to optimize development, promote health outcomes, and deliver responsive and supportive services. Canada
Loading... -
Child Health Epidemiology Reference Group (CHERG)
GENEVA, SWITZERLAND. To develop and deploy new and improved evidence on the causes and determinants of maternal, neonatal and child morbidity and mortality, on intervention coverage, and on the effectiveness of interventions to inform and influence global priorities and programs. United States
Loading... -
Education for Change
PETERBOROUGH STREET, CHRISTCHURCH. To build a strong culture of respect for children that is visible in our country's systems and services, conversations and communities, hearts and homes. New Zealand
Loading... -
Enfermeria Neonatal
HONDURAS, BUENOS AIRES.To promote humanized health care based on scientific evidence among health care workers and the community. Argentina
Loading... -
European Academy of Paediatrics
GENEVA, SWITZERLAND.To improve standards in training, service and research and to represent the professional interests of paediatricians in the EU. Switzerland
Loading... -
European Association of Perinatal Medincine (EAPM)
MILAN, ITALY. To bring together groups and individuals in Europe who are interested in promoting the science of perinatal medicine, for the benefit of mothers and their children Italy
Loading... -
European Board and College of Obstetrics and Gynaecology (EBCOG)
BRUSSELS, BELGIUM.To improve the health of women and unborn and newborn babies by promoting the highest possible standards of care. Belgium
Loading... -
European Federation of Critical Care Nursing Association (EFCCNA)
EUROPE. To promote collaboration and equity among the national critical care member associations in order to improve nursing care of critically ill patients and their families.
Loading... -
European Society for Paediatric Gastroenterology, Heptalogy and Nutrition (ESPGHAN)
To promote the health of children with special attention to the gastrointestinal tract, liver and nutritional status, through knowledge creation, the dissemination of science based information, the promotion of best practice in the delivery of care and the provision of high quality education for paediatric gastroenterology, hepatology and nutrition professionals in Europe and beyond.
Loading... -
European Society of Intensive Care Medicine (ESICM)
BRUSSELS, BELGIUM. Supports and promotes the advancement of knowledge in intensive care medicine, in particular the promotion of the highest standards of multidisciplinary care of critically ill patients and their families through education, research and professional development Belgium
Loading... -
European Society of Paediatric and Neonatal Intensive Care – ESPNIC
GENEVA, SWITZERLAND. To promote the delivery of the highest quality of care to critically ill children throughout Europe. Switzerland
Loading... -
European Society of Paediatric and Research (ESPR)
EUROPE. To promote paediatric research in Europe and encourage collaboration between different specialised fields of paediatrics to maintain paediatrics as a unified, scientifically orientated discipline.
Loading... -
Global Health Media Project
WAITSFIELD VERMONT. To help save lives, one health care teaching video at a time United States
Loading... -
HealthyChildren.org (American Academy of Pediatrics - AAP)
ELK GROVE VILLAGE, ILLINOIS. To attain optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. United States
Loading... -
Healthy Newborn Network
FAIRFIELD CONNECTICUT (part of Save the Children). Addressing critical knowledge gaps in newborn health. United States
Loading... -
Helping Babies Breathe
ELK GROVE VILLAGE ILLINOIS. To attain optimal physical, mental, and social health and well-being for all infants, children, adolescents and young adults United States
Loading... -
HINARI Access to health in research programme
GENEVA SWITZERLAND. To enable low- and middle- income countries to gain access to one of the world's largest collections of biomedical and health literature Switzerland
Loading... -
IDEA Infant & Toddler Coordinators Association
INDIANAPOLIS, INDIANA. To assist any child under the age of three years in the United States or its territories who has a disability or significant delays in development. United States
Loading... -
Immunization Action Coalition
SAINT PAUL, MINNESOTA. To increase immunization rates and prevent disease by creating and distributing educational materials for health professionals and the public that enhance the delivery of safe and effective immunization services. United States
Loading... -
Infant and Young Child Nutrition Project
WASHINGTON DC. To improve nutrition for mothers, infants, and young children and promote HIV-free survival of children. United States
Loading... -
Info for Health
BALTIMORE, MARYLAND. To improve family planning and reproductive health services in low- and middle-income countries. United States
Loading... -
International Confederation of Midwives
THE HAGUE, THE NETHERLANDS. To strengthen Midwives Associations and to advance the profession of midwifery globally by promoting autonomous midwives as the most appropriate caregivers for childbearing women and in keeping birth normal, in order to enhance the reproductive health of women, and the health of their newborn and their families. The Netherlands
Loading... -
International Pediatric Association
WEBSTER GROVES, MISSOURI.Promoting physical, mental, and social health for all children, and in realizing the highest standards of health for newborns, children, and adolescents in all countries of the world. United States
Loading... -
LittleSteps, South Africa
SOUTH AFRICA. To make the preterm birth and baby journey a special one by providing information and support South Africa
Loading... -
March of Dimes
WHITE PLAINS, NEW YORK. To improve the health of babies by preventing birth defects, premature birth and infant mortality. United States
Loading... -
Medical Aid Films
LINCOLN'S INN FIELDS, LONDON. Use film and innovative media to transform the health and wellbeing of women and children around the world United Kingdom
Loading... -
Merck for Mothers
KENILWORTH, NEW JERSEY. To bring better healthcare and innovative health solutions to millions of people across the developing – and developed – world, through groundbreaking public-private partnerships. United States
Loading... -
National Association of Neonatal Nurses (NANN)
CHICAGO, ILLINOIS. To be the professional voice that shapes neonatal nursing through excellence in practice, education, research, and professional development United States
Loading... -
National Association of Neonatal Therapists (NANT)
CINCINNATI, OHIO. Dedicated to supporting the professional development and personal growth of neonatal occupational therapists, physical therapists and speech-language pathologists. United States
Loading... -
National Birth Defects Prevention Network
HOUSTON, TEXAS.To establish and maintain a national network of state and population-based programs for birth defects surveillance and research. United States
Loading... -
National Early Childhood Transition Center (NECTC)
LEXINGTON, KENTUCKY. To examine factors that promote successful transitions between infant/toddler programs, preschool programs, and public school programs for young children with disabilities and their families. United States
Loading... -
National Library of Medicine
BETHESDA, MARYLAND. maintains and makes available a vast print collection and produces electronic information resources on a wide range of topics that are searched billions of times each year by millions of people around the globe United States
Loading... -
Neonatal Network of the Swedish Paediatric Nurses Association
SWEDEN. An association of nurses working in or with an interest in health care for children and adolescents. Sweden
Loading... -
NICUniversity
WASHINGTON CROSSING, PENNSYLVANIA. To be an educational and informational resource for neonatologists and other members of the neonatology health care team United States
Loading... -
NICU University
WASHINGTON CROSSING, PENNSYLVANIA. To be an educational and informational resource for neonatologists and other members of the neonatology health care team United States
Loading... -
NIDCAP Federation
BOSTON, MASSACHUSETTS. To promote the advancement of the philosophy and science of NIDCAP care and to assure the quality of NIDCAP education, training and certification for professionals and hospital systems. United States
Loading... -
PubMed
BETHESDA, MARYLAND. To develop new information technologies to aid in the understanding of fundamental molecular and genetic processes that control health and disease. United States
Loading... -
Recommended Standards for Newborn ICU Design
BETHESDA, MARYLAND. Standards for Newborn ICU Design United States
Loading... -
S.T.A.B.L.E.
PARK CITY, UTAH. To provide this high-level, practical, accessible, and effective education to help reduce infant morbidity and mortality, improve neonatal outcomes and most importantly, improve the quality of life for infants and their families. United States
Loading... -
Save the Children/Saving Newborn Lives
FAIRFIELD, CONNECTICUT. To give children a healthy start, the opportunity to learn and protection from harm United States
Loading... -
Singapore Nurses Association – Pediatric and Neonatal Nurses (SNA)
MAUDE ROAD, SINGAPORE. To raise the profile of nursing in Singapore, facilitate and support the contributions of nurses to improve and enhance the health of the population. Singapore
Loading... -
SmileTrain
NEW YORK, NEW YORK. To give every cleft child the chance to smile United States
Loading... -
South African Neonate, Infant and Toddler Support Association (SANITSA)
SOUTH AFRICA. To establish and promote a link between the developmentally at risk and / or ill neonate, infant and toddler (NIT) and their families / caregivers with early intervention services in the community South Africa
Loading... -
Technical Assistance Center on Social Emotional Intervention for Young Children
TAMPA, FLORIDA. To use evidence-based practices to improve the social-emotional outcomes for young children with, or at risk for, delays or disabilities. United States
Loading... -
The Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN)
WASHINGTON DC. To improve and promote the health of women and newborns and to strengthen the nursing profession through the delivery of superior advocacy, research, education and other professional and clinical resources to nurses and other health care professionals. United States
Loading... -
Union of European Neonatal and Perinatal Societies (UENPS)
MILAN, ITALY. To improve healthcare in the neonatal and perinatal medicine in the European countries. Italy
Loading... -
USAID Global Health E-Learning Center
WASHINGTON DC.To provide its worldwide mission-based health staff with access to state of the art technical global health information. United States
Loading... -
Your Therapy Source
SCHAGHTICOKE, NEW YORK. Online resource for special education, pediatric occupational therapy and pediatric physical therapy United States
Loading... -
Zero to Three
WASHINGTON D.C.To ensure that all babies and toddlers have a strong start in life. United States
Loading...
Publication
-
Advances in Neonatal Care (AWHONN Journal)
PHILADELPHIA, PENNSYLVANIA. Addressing the practice challenges faced every day—caring for the 40,000-plus low-birth-weight infants in Level II and Level III NICUs each year—the journal promotes evidence-based care and improved outcomes for the tiniest patients and their families. United States
Loading... -
Complex Child Magazine
INTERNATIONAL. Online magazine and archive of articles relating to children with complex medical issues and disabilities. United States
Loading... -
Exceptional Parent Magazine
UNITED STATES. Publication for parents of exceptional children. United States
Loading... -
Gastroenterology Nursing
PHILADELPHIA, PENNSYLVANIA. Delivers the information nurses need to stay ahead in this specialty. The journal keeps gastroenterology nurses and associates informed of the latest developments in research, evidence-based practice techniques, equipment, diagnostics, and therapy. United States
Loading... -
Journal of Pediatrics
Loading... -
Neonatal Network: Journal of Neonatal Nursing
PETALUMA, CALIFORNIA. To provide quality neonatal education and programs at a reasonable cost to all newborn health care professionals. United States
Loading... -
Parenting Special Needs Magazine
INTERNATIONAL. Digital Magazine full of tips, resources, articles and more across all special needs. United States
Loading... -
Preemie Family Newsletter
INTERNATIONAL. Free monthly newsletter for parents in the Neonatal Intensive Care Unit (NICU), at home and into the school years. We also have a professionals list for Preemie Family for NICUs and other programs to get this out to their families. United States
Loading... -
Preemie Professional Newsletter
INTERNATIONAL. Free monthly newsletter for professionals that care for premature infants in the Neonatal Intensive Care Unit (NICU), at home (Early Intervention as well as Pediatricians and Specialists) and into the school years (Special Education). United States
Loading...
Safety
-
First Candle
UNITED STATES. A landmark organization devoted to SIDS education, research and support, that is also now working to do the same with stillbirth and sudden unexpected infant deaths. US
Loading... -
Smart911
This service helps 9-1-1 protect your family by providing more information to first responders. You should sign up too, it is free! US
Loading...
Support Group
-
Arc, The - for People with Intellectual and Developmental Disabilities
WASHINGTON D.C. To promote and protect the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. United States
Loading... -
Caring Bridge
EAGAN, DAKOTA. To amplify the love, hope and compassion in the world, making each health journey easier. United States
Loading... -
Con Amor Vencerás A.C., Primero lo Primero
MEXICO. All premature babies, including preemies that have passed away and their families and prevention of premature birth. Virtual, in-person and education groups for Spanish speaking families and pros. Mexico