Cerebral Palsy Alliance

Cerebral Palsy Alliance is a non-profit that provides services to thousands of people with a disability and their families. Cerebral palsy (CP) is a physical disability that affects the way that a person moves.

The Smallest Things Charity

Welcome to The Smallest Things, a registered charity promoting the good health of premature babies and their families.

United Cerebral Palsy

Organization devoted to advocacy, research and more for individuals with Cerebral Palsy.

Children's Health Insurance Program (CHIP)

Learn about free/low-cost health & dental coverage for children through Medicaid & CHIP for qualified children and help spread the word.

Medicaid

The Center for Medicaid and CHIP Services (CMCS) is one of six centers within the Centers for Medicare & Medicaid Services, an agency of the U.S. Department of Health and Human Services (HHS). CMCS serves as the focal point for all national program policies and operations related to Medicaid and the Children's Health Insurance Program (CHIP).

AgapeCare Cradle

UNITED STATES. Faith-based project to help families in the Wichita, Kansas area surrounding the loss of an infant in providing material support, planning support and emotional support.

A Place to Remember

UNITED STATES. Uplifting support resources for those who have been touched by a crisis in pregnancy or the death of a baby.

Center for Loss in Multiple Birth (CLIMB), Inc.

UNITED STATES. Provides parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood. It is also to assist extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss.

Ellie's Light

MINNESOTA. To keep Ellie’s Light shining by supporting families with children experiencing severe chronic, terminal or critical illnesses, and those who have recently experienced the sudden loss of a child.

Faith's Lodge

UNITED STATES. Grief is your own personal journey. We provide a serene stop along the way. A place where those coping with the death or medically complex condition of a child can find hope and strength for the future. Not to forget; but to reflect. We warmly invite you to take a leap of faith.

Heaven's Gain

UNITED STATES. Provides small burial caskets for miscarried, premature and early stillborn babies.

Jalen's Gift Foundation

UNITED STATES. Provides financial assistance for memorial services, emotional grief support​, informational resources on pregnancy and infant loss, and a memorial keepsake to the suffering families and to the hospitals.

Memory JAR

UNITED STATES. Comforting Ideas for Grief, Funeral Planning, Anniversary Planning

Molly Bears

UNITED STATES. Creates special bears for angel families to provide a positive and comforting impact for families enduring any form of infant loss.

Now I Lay Me Down to Sleep

UNITED STATES. Non-profit providing access to photographers worldwide for families who have lost an infant.

Perinatal Hospice and Palliative Care: Continuing Your Pregnancy

Perinatal hospice and palliative care is for families who continue their pregnancies with babies whose lives are expected to be brief.

Remembering Our Babies - October 15th

UNITED STATES. Pregnancy and Infant Loss Remembrance Day is on October 15th each year for the community of grieving parents to come together and remember their beloved babies.

Skyler's Gift Foundation

Grants for funerals for infants who have died due to premature birth as well as funding to research toward ending premature birth.

The Beautiful Scar Project

UNITED STATES. The Beautiful Scar Project’s mission is to provide families grieving the death of their infant due to miscarriage, stillbirth, and neonatal death the tools to turn the loss of their much loved and desired baby into a beautiful scar.

Black Mothers Breastfeeding Association

UNITED STATES. To reduce racial inequities in breastfeeding support for African Americans by building foundational networks of support, and strengthening systems to overcome historical, societal and social barriers to breastfeeding success.

Work. Pump. Repeat. by Jessica Shortall

UNITED STATES. Great book for helping mothers handle pumping breast milk while going back to work.

A Sensory Life!

UNITED STATES. Free sensory resources and tools for understanding Your Child's Sensory Signals

Can Do Kiddo

UNITED STATES. To help you confidently + playfully give your kiddos the best start possible.

CerebralPalsySymptoms.com

UNITED STATES. To provide the public with accurate and up to date information on the many aspects of cerebral palsy and other birth injury complications.

Hands On As We Grow

UNITED STATES. To help parents create memorable childhoods, as stress and guilt-free as possible.

Lemon Lime Adventures

UNITED STATES. Developing a place where readers can find ideas, resources, and reassurance in the subjects I write about.

OT Plan

IRVINE, CALIFORNIA. To match the skills you want to promote, with the materials you have, to a detailed activity that will help you strengthen certain skills

Pathways

CHICAGO, ILLINOIS. To help improve children’s sensory, motor, and communication skills.

Pink Oatmeal

UNITED STATES. To find ideas on child development, play, and movement.

Sensational Kids

KILDARE TOWN, IRELAND.To be the leading provider of accessible and affordable developmental and educational services to help the 1 in 5 children with special educational needs to realise their potential.

Sensory Processing Disorder Parent Support

UNITED STATES. To share with others what I have learned from my own two children who have special needs and have been diagnosed with multiple diagnosis including Sensory Processing Disorder.

Sensory Smarts

UNITED STATES. To help parents of kids with Sensory Processing issues.

The Inspired Treehouse

UNITED STATES. Sharing information, tips, and strategies to help readers conquer the common developmental roadblocks that come up for kids.

The Sensory Spectrum

UNITED STATES. Resource for parents with Sensory Processing Disorder (SPD) kiddos.

Your Kids OT

AUSTRALIA. Website for parents, educators, therapists and anyone else interested in providing creative learning opportunities for kids.

EFCNI

INTERNATIONAL. Led by Silke Mader, this organization has a membership that spans the far reaches of Europe's preemie support groups and together they provide a advocacy voice for newborns and their families.

Family Advocacy Network (National Perinatal Association)

UNITED STATES. Provides 1) a regular consulting call for groups supporting NICU parents, 2) a database of support groups, and 3) a regular conversation between NICU psychologists.

Global Alliance to Prevent Prematurity & Stillbirth

INTERNATIONAL. A neonatologist and a pediatric infectious disease specialist at Seattle Children’s formed GAPPS to accelerate research into the o causes and mechanisms of preterm birth and stillbirth in order to reduce the impact on children, families, and the community.

National Coalition for Infant Health (NCfIH)

UNITED STATES. Advocates on behalf of premature infants from birth to age two. NCfIH envisions safe, healthy infants whose families can access the information, care and treatment their babies need.

NICU Parent Network

UNITED STATES. The NICU Parent Network represents organizations that provide support to parents of preemies. The Alliance is committed to helping it's members provide quality information, resources, and support efficiently and effectively for the families we serve.

Easter Seals

CHICAGO, ILLINOIS.To provide exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Genetic and Rare Diseases Information Center

GAITHERSBURG, MARYLAND. Provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Genetics Home Reference

BETHESDA, MARYLAND. Provides consumer-friendly information about the effects of genetic variation on human health.

Global Genes Project

ALISO VIEJO, CALIFORNIA. To Eliminate the Challenges of Rare Disease.

IDEA 2004, Part C

UNITED STATES. To provide a "one-stop shop" for resources related to Part C of the Individuals with Disabilities Education Act (IDEA) and its implementing regulations, announced on September 6, 2011.

Orphanet

PARIS, FRANCE. To provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders.

Rare Genomics Institute

DOWNEY, CALIFORNIA. To help rare disease patients find hope for a cure.

Center for Parent Information and Resources

UNITED STATES. CPIR serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

Disability.gov

UNITED STATES. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need.

IRLU

UNITED STATES. Creates opportunities for independence for people with disabilities through research, education, and consultation.

Job Accommodation Network (United States Department of Labor)

UNITED STATES. The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.

Pacer Center

UNITED STATES. PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults.

The ARC

UNITED STATES. The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Center for Early Learning and Literacy

MORGANTON, NORTH CAROLINA. To promote the adoption and sustained use of evidence-based early literacy learning practices.

Center for Parent Information and Resources

NEWARK, NEW JERSEY. Serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

Childcare Aware

ARLINGTON, VIRGINIA. To help families learn more about the elements of quality child care and how to locate programs in their communities.

Early Childhood Technical Assistance Center (ECTAC)

CHAPEL HILL, NORTH CAROLINA. Improving state systems, increasing implementation of effective practices, and enhancing child and family outcomes.

Head Start

UNITED STATES. To promote school readiness of children ages birth to 5 from low-income families by supporting their development in a comprehensive way.

Healthy Children (by the American Academy of Pediatrics)

ELK GROOVE VILLAGE, ILLINOIS. The only parenting website backed by 66​,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

Bridges to Access (GlaxoSmithKline)

UNITED STATES. Offers Advair, Flonase, Flovent, Serevent and Ventolin HFA medicines to those who qualify.

Compassionate Allowances via Social Security Administration

UNITED STATES.

Medicaid & CHIP

UNITED STATES. Government benefits program for public.

Medicaid Waivers

UNITED STATES. Listing of the various Medicaid waivers for each state in the United States. Also provides a nice history of Medicaid. Created by Complex Child Magazine a free digital magazine of articles related to raising a child with complex needs.

Nestle Healthcare Nutrition Patient Assistance Programs

UNITED STATES. Provides financial help for specialty nutrition by Nestle for tube and oral feedings

Pediatric Assistance Fund (Healthwell Foundation)

UNITED STATES. Provides grants for medical treatments.

Supplemental Security Income (SSI)

UNITED STATES. Government benefits program for public.

Women, Infants & Children (WIC)

UNITED STATES. Government benefits program for public.

Barnes Lodge

ST. LOUIS, MISSOURI: Free Lodging

Fisher House Foundation

UNITED STATES. Housing for Military and Veteran Families During the Illness/Treatment of a Loved One

Haven House

ST. LOUIS, MISSOURI. Special Lodging for those traveling to St. Louis for medical care.

Hospitality Homes

BOSTON, MASSACHUSETTS. Free Lodging

Hospitality Homes

BOSTON, MASSACHUSETTS. Free Lodging

MedStay

NORTH CAROLINA. Low Rates for Local Hotels

Rest Easy Assistance at Dartmouth Hitchcock Medical Center

LEBANON, NEW HAMPSHIRE. Low Rates for Local Hotels

Rest Easy Assistance at Dartmouth Hitchcock Medical Center

LEBANON, NEW HAMPSHIRE. Low Rates for Local Hotels

Ronald McDonald House Charities

INTERNATIONAL. Low-cost lodging for families undergoing treatment at a local hospital.

KidsHealth

UNITED STATES. Provides easy to understand pediatric medical information for a variety of audiences: parents, kids, teens and also educators.

Alliance for Patient Access

UNITED STATES. AfPA is a national network of physicians with the shared mission of ensuring and protecting patient access to medical treatments and therapies, including prescription pharmaceuticals, biologics, and medical devices. AfPA accomplishes this mission through educating members and the public on policy priorities and training them to be an effective advocate.

Bee Mighty

UNITED STATES. Bee Mighty provides financial assistance to the parents of micro-preemies battling significant medical challenges with limited financial resources, enhancing the child’s development and quality of life. Bee Mighty was established so that families can focus on each other and concentrate on the development of their child without the added stress of financial ruin.

Bliss

UNITED KINGDOM. Originally set up as Baby Life Support Systems, the charity first focused on raising money for medical equipment for hospitals. Over the years Bliss has expanded to provide staff training, family support, perinatal care and now a new program, Bliss Nurses.

Brave Beginnings

UNITED STATES. Provides life-saving neonatal medical equipment to NICUs.

Caiden's Hope Foundation

UNITED STATES. The organization works directly with hospital social services to “families living in the NICU” with travel support in the form of gasoline, hotel accommodations, bus and rail accommodations, parking and food expenses.

Canadian NICU Support Foundation

CANADA. To build a national network of families, healthcare providers and researchers to support and encourage NICU families and NICU graduate families. Programs include: Blog with tips and personal anecdotes about parenting in the NICU/at home; Host family teas; Publish a monthly newsletter (email subscription and blogged); Daily Dose of Hope feature; Comfort Kits for tertiary new admissions to the NICU; A Daily Dose of Hope Encouragement Kits; Communty Play Groups.

Capturing Hopes Photography

INTERNATIONAL. From her own personal experience of having a child who passed away at 6 months of age, Deneen Bryan saw the incredible need for professional photography at such tenuous time. With the encouragement of the Ronald McDonald House staff and her own family, Capturing Hopes Photography was born.

CP NOW

UNITED STATES. To optimize the health, wellness and participation of people with cerebral palsy and their families throughout the lifespan.

Dandy-Walker Alliance, Inc.

INTERNATIONAL. Focus: Individuals and families affected by Dandy-Walker Syndrome, the most common malformation of the hindbrain region. Is doing intensive research with data and genetic respository.

Eli Collins Foundation

Embrace

INTERNATIONAL. Embrace was founded at Stanford University’s Institute of Design in 2008 when a group of graduate students were challenged to help families in the poorest regions of the world by designing an intervention (the Embrace Warmer) for neonatal hypothermia that cost less than 1% of the price of a $20,000 state- of-the-art incubator.

Emma's Footprints

NW INDIANA AND UNITED STATES. Care packages for NICU families,bereavement care packages,support for families after the loss of an infant,projects toward bringing awareness to premature birth and infant loss.

Families Blossoming

INTERNATIONAL. 1:1 Coaching (parents), group coaching, online coaching program, workshops, teleseminars and webinars.

Feeding Matters

UNITED STATES. Providing support to both families and medical professionals who are caring for infants and children with pediatric feeding struggles.

Feeding Tube Awareness Foundation

UNITED STATES. Association devoted to bringing awareness, education and support for families with a child on a feeding tube.

First Candle

INTERNATIONAL. Priority issues for the organization include eliminating stillbirth, Sudden Infant Death Syndrome (SIDS) and other Sudden Unexpected Infant Deaths (SUID) with research, education and advocacy.

Foundation for Premature Infants

INTERNATIONAL. To advocate for the right of all premature infants to be cared for in a developmentally supportive manner.

High Risk Hope

STATE AND LOCAL, TAMPA, FLORIDA. High Risk Hope reaches 1,200 new families per year with Bed Rest Baskets (for bed-rest) and NICU Napsacks (for families) filled with items to make the stay easier and the hope to bring home a healthy infant.

Human Milk Banking Association of North America

UNITED STATES & CANADA. To provide standards for all North American milk banks. The organization runs 16 milk banks throughout the United States and Canada.

Hydrocephalus Association

UNITED STATES. The organization is the largest private funder of research into new treatment options programs and surgical techniques. Focus is on families of preemies and seniors.

International Neonatal Consortium

INTERNATIONAL. A global collaboration formed to forge a predictable regulatory path for evaluating the safety and effectiveness of therapies for neonates.

Jackson Chance Foundation

CHICAGO, ILLINOIS. JCF in partnership with Ann & Robert H. Lurie Children’s Hospital of Chicago created the NICU Transportation Program which provides complimentary parking as well as transportation to all families, in each and every day their child is in the NICU.

Kindness Matters, Inc.

UNITED STATES. Bullying is the fear of every parent, preemie or not. Jacki James worked hard to help her 13-year old son, Peyton (a former preemie), manage endless teasing about his differences at school. In October 2014, he took his own life. His mother Jacki created Kindness Matters in his memory to create an alternative to anti-bullying campaigns to one of “pro-kindness.”

Mental Health America

UNITED STATES. Individuals can take a free, confidential, and anonymous mental health screeing at http://www.mhascreening.org They can also contact the MHA af liates to inquire about local programs and services such as support groups and referral services, peer support, trainings, and more.

National Association of Neonatal Therapists(NANT)

UNITED STATES. The focus is Neonatal OT, PT and SLPs and the premature and medically complex infants they serve. Programs include an annual national educational conference.

National Lekotek Center

UNITED STATES. Programs include: Individual Family Play Sessions; Toy Lending Libraries; Play Groups; Compuplay (computer-basedlearning); Professional Toy Lending; Training Services (parent and professional); www.AblePlay.org for ratings and reviews on current toys for children with special needs; Toy Industry Consultation & Services.

NEC Society

INTERNATIONAL. Families with premature infants and fragile infants who have been impacted by necrotizing enterocolitis (NEC) or at risk of being impacted by NEC. The society also strives to engage clinicians and researchers who are committed to combating NEC.

Newborn Hope

COLORADO. Provides resources for Colorado babies and families impacted by prematurity.

NIDCAP Federation International

INTERNATIONAL. From her own experience with the complicated birth of her son, Heidelise Als, PhD, a psychologist at Boston Children’s Hospital and the Harvard Medical School, saw a void in the hospital systems’ nurturing of the baby, especially of those high risk for disabilities, and their families. She is the force behind the NIDCAP Federation International (NFI).

Now I Lay Me Down to Sleep

INTERNATIONAL. When Maddux Achilles Haggard was born on 2/4/05 with a life- threatening condition, his parents, Mike and Cheryl Haggard made the excruciating decision to remove him from life support. They asked photographer Sandy Puc' to take portraits of their son before and afterward so they could create a lasting legacy for the family. This inspired Cheryl and Sandy to begin the organization Now I Lay Me Down to Sleep.

Oley Foundation

Parents of Infants & Children with Kernicterus (PICK)

UNITED STATES. Preemies parents are quite familiar with jaundice as they watch their baby bathe in the incubator’s “bili lights” during the stay. For those that do not get the proper treatment, Kernicterus can create life-long damage and even death. PICK was formed to help raise awareness and support families that have been affected.

Parent to Parent USA

UNITED STATES. This organization brings together state Parent to Parent programs nationwide under one umbrella to help share best practices, resources and more for the betterment of families in need.

Pebbles of Hope

INTERNATIONAL. The Pebbles of Hope mission is to help preemies survive and thrive by leveraging media, technology, and community to provide education and training to parents and other caregivers outside of traditional health facilities.

Pediatric Hydrocephalus Foundation

UNITED STATES. Organization that raises awareness, fundraises for a cure and adovocates at all policy levels on behalf of families working through pediatric hydrocephalus.

Sensory Processing Disorder Foundation

UNITED STATES. Improve the lives of children and adults with SPD and their families through research, education, and increased global awareness. The vision is a future in which every child with SPD is identified and treated by age 6.

Skyler's Gift

UNITED STATES. After the loss of their son, Skyler, a 24-weeker twin, Stephen and Tiffany Bowen learned of the heartache of preemie families who had difficulty in paying for funeral costs and had to opt for non-burial or mass cremation. Skyler’s Gift Foundation gives families their back their dignity and more.

So Precious

NHS FORTH VALLEY, SCOTLAND (MATERNITY, NEONATAL & PAEDIATRIC UNITS). After having critically ill babies, Alison Kilgour and her husband David along with fellow parent Lorna Blue wanted to help the units and therein the families.

Special Kids, Special Care

UNITED STATES. Organization serving Colorado to address the many gaps for special needs families and to educate their healthcare providers.

Team Grayson

INTERNATIONAL. To raise awareness about Necrotizing Enterocolitis (NEC) and to end it.

The Preemie Project

IOWA. The Preemie Project seeks to provide comfort and support to critically ill infants and their families in Newborn Intensive Care Units in Iowa. We achieve our mission through the support of a devoted group of local and national volunteers.

Tiny Feet Foundation

Toby's Shower for Babies

4 HOSPITALS IN NEBRASKA & WYOMING. Baskets of items for families as well as mentor program.

Triple Heart Foundation

United States Institute for Kangaroo Care

INTERNATIONAL. The organization is focused on giving full-term and pre- term infants worldwide the immense benefits of Kangaroo Care. Provides an annual intensive certification course on which is a 2.5 day course that covers all the science, implementation, knowledge, skills, and application particulars needed to provide safe skin-to- skin contact to all newborns and their parents.

Unspoken Grief

INTERNATIONAL. Unspoken Grief provides a website of support for anyone touched directly (e.g. moms, dads) or indirectly (i.e. doctors, friends, siblings) by perinatal grief due to miscarriage, stillbirth or neonatal death.

Vision Rearch ROPARD Foundation

UNITED STATES. This organization is the merger of two established eye research 501(c) 3 philanthropic groups that will lead to a new level of patient information and to funding clinically relevant research. To that end, VRRF seeks to o bring “hope for vision” for children and adults.

Not Acceptable!

Susan Swan James

CANADA AND UNITED STATES. Life Coach

NICU Healing (Kara Wahlin)

UNITED STATES. One on one trauma therapy for NICU parents.

Parijat Deshpande

UNITED STATES. One on one therapy for high risk pregnancies, trauma, and more.

The Superhero Project (Special Needs Photography by Little Earthling Photography)

UNITED STATES. Help special needs children show off their inner strength while offering the gift of professional photography to their families.

Merck Helps Program

UNITED STATES. Provides prescription assistance programs

Needy Meds

UNITED STATES. Offers a database of free or at low cost medications for people who are uninsured or low income.

PAN Foundation

UNITED STATES. Provides prescription assistance with Synagis (palivizumab) injections to prevent against severe Respiratory Syncytial Virus (RSV).

Partnership for Prescription Assistance

UNITED STATES.

Partnership for Prescription Assistance (List of Participating Programs)

UNITED STATES.

Advance My Baby by Paula Tarver, OTR/L & Jeanne Martin, OTR/L

UNITED STATES. Occupational Therapists Tarver and Martin have created a colorful, clear and friendly guide to provide parents of premature infants with exercises to help advance development.

A Giraffe Called Neo (Alison Schleef)

INTERNATIONAL. Postpartum Depression or Post Natal Depression (PPD or PND) is something that Schleef describes with refreshing honesty as she relates the story of her son’s traumatic birth at 28 weeks gestation, his and her transport to another hospital and a three month NICU stay that left this mother, naturally, alone and scared. This should be required reading in every NICU, parent and professional alike.

Bambo Nature Abena Diapers

UNITED STATES. All natural, eco-friendly diapers.

Beyond the Laces (Book)

Come Home Soon Baby Brother! Come Home Soon Baby Sister!

UNITED STATES. Products for Big Brothers and Sisters with Siblings in the NICU

Firefly Upsee

INTERNATIONAL. Firefly Upsee product line provides children with disabilities the ability to walk and move.

For the Love of Babies (book by Sue Hall, MD)

UNITED STATES. Book by Sue Hall, MD that details the stories of babies in the NICU and why it is important that we properly support families in order to better support the baby.

From Hope to Joy by Jennifer Degl

INTERNATIONAL. Author and Mom Jennifer Degl brilliantly details the harrowing world of bed rest and one family’s desperation to keep their baby girl alive despite the odds.

Girl in Glass (Deanna Fei)

INTERNATIONAL. Imagine ending up in the media spotlight over a CEO’s crass comments about to your “distressed baby’s” medical bills being the reason for AOL’s employee benefits restructuring. Fei tells her family’s side of the story from traumatic birth to NICU stay to homecoming and a CEO’s poor excuse for the challenged bottom line

Go Preemies! Book

INTERNATIONAL. Go Preemies is the book every parent will want to have on hand for a long, long time as its highlighting of famous preemies succeeding despite the odds will resonate for a lifetime.

Grayson: A Documentary

INTERNATIONAL. Grayson takes the viewer into the world of the Kapferer family and the life of their premature baby boy, Grayson, who died after birth at 34 weeks gestation and developing Nectrotizing Enterocolitis (NEC).

Healing of the 1 lb. Baby

INTERNATIONAL. There is no shortage of Preemie Mom memoirs on the market but this one has a unique flavor combined with honesty in a new way. As the mother to Elouisa, a 1-pound baby born to author Marie Delanote, there is a strong spiritual note in the realm of chakras and visual healing methods. The story is compelling and takes the preemie experience to a new level.

Helping Your Child with Extremely Picky Eating by Katja Rowell & Jenny McGlothlin

INTERNATIONAL. In this book, Katja Rowell and Jenny McGlothlin outline tips, tools, and coping mechanisms to help parents draw out the food lover that can present itself in any child. While some of the techniques described in the book are novel, there is nothing earth shattering or overly difficult for a frustrated parent to implement.

Hold Your Prem (Book)

UNITED STATES. Book that provides great information on Kangaroo Care and more. Great for parents and professionals alike.

It's A Preemie Thing

INTERNATIONAL. Sassy sayings on clothing items that help to lighten the preemie experience and bring a community of NICU families together. The company has provided team shirts annually at March for Babies walks and more.

Kozie Clothes

INTERNATIONAL. Who says preemies going home on g-tubes can’t be healthy, safe and also be fashionistas?

Little Lotus

little man

INTERNATIONAL. Nicole Conn's international award-winning documentary of her 1 lb. son's NICU stay after being born at 26 weeks. Same film that was on the Showtime Channel for 5 years.

little man (professionals edition)

INTERNATIONAL. Professional sector training version of Nicole Conn's international award-winning documentary of her 1 lb. son's NICU stay after being born at 26 weeks. Same film that was on the Showtime Channel for 5 years.

Married with Special Needs Children

INTERNATIONAL. Great book for couples working through life with a special needs child.

MATT: The Film

INTERNATIONAL. The short film is centered around Matt (who had been born 3 months premature at 1.5 lbs. and had suffered brain trauma), is now a senior at Santa Monica High School and becomes a member of the varsity football team and later the basketball team.

Medolac

INTERNATIONAL. Product company providing donor milk and human milk fortifier.

Miracle Baby Shirts

INTERNATIONAL. Tink & Key, a website born out of a NICU Mom’s interest to celebrate miracles, has a full line of tees, onesies and more with a variety of sayings and each with great style. Each item is made with American Apparel Clothing (sweat-shop free).

My Bubble Wrap Girl - Sofia's Story by Becky Meechan

INTERNATIONAL. Becky Meechan tells her story of her “Poppet”, a 24-weeker preemie that had numerous ups and downs in the NICU.

NICU Art Crib Cards

INTERNATIONAL. EVERYtinyTHING has come up with a set of classy and NICU friendly art work. Full of inspirational sayings and preemie-friendly graphics, each two-sided piece will bring a smile to both NICU staffer and parent.

No Time to Quit

UNITED STATES. No Time to Quit: Life in a Broken Package is the biography (as told by her daughter Gail Lipe) of Gail Johnson, a surviving twin born at 6 months gestation in 1932 and later diagnosed with Cerebral Palsy. Page after page is filled with the courage and tenacity of a woman focused on living life to the fullest despite being disabled.

Nurtured By Design

INTERNATIONAL. Product company that is the home of the Zaky, the Kangaroo Zak and more.

Once in a Lullaby (Cheryl Campbell and Various Artists)

INTERNATIONAL. Cheryl Campbell, a classically trained soprano, music teacher and preemie mother crowd- funded a CD that could be donated to families in the Mount Sinai NICU. With 16 soothing classical pieces mixed with pieces of a lullaby quality (like “Over the Rainbow”), Campbell has done a superb job. Grand- parents, families, and friends will find this a perfect gift for preemies in the NICU.

Once Upon a Preemie (Book)

On Coming Alive Journal (Book/Journal)

Owlet Vitals Baby Monitor

INTERNATIONAL. Didn’t get discharged from the NICU with a monitor and freaked out? The Owlet Baby Vitals Monitor is a consumer-grade product that can help.

Pacifier Activated Lullaby - Powers Medical Devices, LLC

UNITED STATES. Product that stimulates non-nutritive sucking (NNS) and organized breath- suck-swallow activity through a pressure transducer system that provides individual lullaby/voice feedback to a correct “suck” technique.

Parenting Children with Special Medical Needs

UNITED STATES. Love and Logic’s special series on special medical needs provides solid tips to get there. And it works.

Peek-A-Boo-ICU

Products for NICU families including special charm bracelets to celebrate NICU milestones.

preemie by Kasey Mathews (Book)

UNITED STATES. Kasey Mathew's biography of her daughter's premature birth, NICU stay and homecoming and beyond and its profound affect on her own mental health. Moms should read this!

Preemie Clothes by Ranenko

INTERNATIONAL. Preemie’s clothing from onesies to hats to pants are unique and perfectly tailored for the NICU. They are soft and soothing for fragile skin and also accessible for various tubes and wires.

Preemie Voices

INTERNATIONAL. Preemie Voices is like looking into a crystal ball and seeing the future. Told in the voices of 41 former micro-preemies now in their 30s, each talks about their lives and give intimate details surrounding their challenges as well as their achievements.

Prolacta

INTERNATIONAL. In addition to respecting what human milk does naturally, we also believe in advancing the science of human milk. Established in 1999, we created the first and only human milk-based neonatal nutritional fortifiers made from 100% donor breastmilk, rather than cows milk. Our nutritional products have proven benefits when used as part of an exclusive human milk diet, such as improved feeding tolerance, improved growth rates, reduction in co-morbidities, shorter NICU stays, and reduced hospital costs.

Raising A Happy Healthy Eater

UNITED STATES. Helping picky eaters become happy healthy eaters.

SafeBaby

UNITED STATES. Product company that provides breast milk tracking, donor milk tracking and breast milk nutrition testing.

Sensory Magnets

ISRAEL. Sensory Treat’s owners, Hadas & Oren Steinberg created SensoryMagnets based upon the experiences of their own children who required seven years of sensory therapies. The magnets are illustrated sensory activities that go across the areas of deep pres- sure, heavy work, jumping, vestibular and oral needs.

The Baby Signing Book

INTERNATIONAL. As the mother of two signing children and Founder of WeeHands, Sara Bingham has authored a baby sign language book that is taking the parenting world by storm. In it, Bingham provides easy-to-use steps and tips to make teaching your infant/child signing simple and straightforward.

The Boy Who Could Run But Not Walk by Karen Pape, MD

INTERNATIONAL. Children with brain inujury are not a lost cause. Neuroplasticty exists and recovery is possible.

The Littlest Peanut by Shannan Wilson (book)

UNITED STATES. A baby record book especially for families with a preemie. Perfect for the NICU stay and afterward.

The Preemie Parent's Survival Guide to the NICU (Book)

INTERNATIONAL. A critically-acclaimed guide for preemie families working through the NICU stay. Written by Deb Discenza (Preemie Magazine) and Nicole Conn (little man). Four color, paperback. 192 pages.

Water Wipes

CO. LOUTH, IRELAND. WaterWipes are the only wipes made with just two ingredients water, specially purified and softened, and a tiny drop of grapefruit seed extract.

99nicu

SWEDEN. The web community for staff in neonatal medicine

American Cleft Palate-Craniofacial Association

CHAPEL HILL, NORTH CAROLINA. To optimize interdisciplinary care and outcomes for individuals with oral cleft and craniofacial conditions through education, research, advocacy, and improved team care.

American College of Physicians

PHILADELPHIA, PENNSYLVANIA. To enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine.

American Medical Resources Foundation (AMRF)

BROCKTON, MASSACHUSETTS. To improve health care around the world by equipping hospitals and health centers that serve the poor in developing nations with medical equipment and related supplies.

American Speech-Language-Hearing Association

ROCKVILLE, MARYLAND. Empowering and supporting audiologists, speech-language pathologists, and speech, language, and hearing scientists through: advancing science,setting standards,fostering excellence in professional practice, and advocating for members and those they serve.

Baby's First Test

To educate parents, family members, health professionals, industry representatives, and other members of the public about the newborn screening system.

Best Beginnings

VALE ROYAL, LONDON. Supports parents in giving their children the best start in life.

BeSweet2Babies Neonatal Pain Videos in Multi-Languages

OTTAWA, ONTARIO. Help kids and their families be the healthiest

BioMedSearch.com

ELLICOTT CITY, MARYLAND. To provide free access to a massive collection of authoritative documents relating to the biomedical field.

British Association of Perinatal Medicine

THEOBALDS ROAD, LONDON. To support newborn babies and their families by providing services that help all those involved in perinatal practice to improve the standards of perinatal care in the British Isles.

Caring Essentials Collaborative, Inc

DORCHESTER CENTER, MASSACHUSETTS. Measurably transform the experience of care for hospitalized infants, their families, and the healthcare professionals who serve them to reflect a trauma-informed care paradigm by providing evidence-based education, coaching and mentoring.

Child-Bright Network

MONTREAL, QUEBEC. To achieve brighter futures for children with brain-based developmental disabilities and their families across their lifespan by creating novel interventions to optimize development, promote health outcomes, and deliver responsive and supportive services.

Child Health Epidemiology Reference Group (CHERG)

GENEVA, SWITZERLAND. To develop and deploy new and improved evidence on the causes and determinants of maternal, neonatal and child morbidity and mortality, on intervention coverage, and on the effectiveness of interventions to inform and influence global priorities and programs.

Education for Change

PETERBOROUGH STREET, CHRISTCHURCH. To build a strong culture of respect for children that is visible in our country's systems and services, conversations and communities, hearts and homes.

Enfermeria Neonatal

HONDURAS, BUENOS AIRES.To promote humanized health care based on scientific evidence among health care workers and the community.

European Academy of Paediatrics

GENEVA, SWITZERLAND.To improve standards in training, service and research and to represent the professional interests of paediatricians in the EU.

European Association of Perinatal Medincine (EAPM)

MILAN, ITALY. To bring together groups and individuals in Europe who are interested in promoting the science of perinatal medicine, for the benefit of mothers and their children

European Board and College of Obstetrics and Gynaecology (EBCOG)

BRUSSELS, BELGIUM.To improve the health of women and unborn and newborn babies by promoting the highest possible standards of care.

European Federation of Critical Care Nursing Association (EFCCNA)

EUROPE. To promote collaboration and equity among the national critical care member associations in order to improve nursing care of critically ill patients and their families.

European Society for Paediatric Gastroenterology, Heptalogy and Nutrition (ESPGHAN)

To promote the health of children with special attention to the gastrointestinal tract, liver and nutritional status, through knowledge creation, the dissemination of science based information, the promotion of best practice in the delivery of care and the provision of high quality education for paediatric gastroenterology, hepatology and nutrition professionals in Europe and beyond.

European Society of Intensive Care Medicine (ESICM)

BRUSSELS, BELGIUM. Supports and promotes the advancement of knowledge in intensive care medicine, in particular the promotion of the highest standards of multidisciplinary care of critically ill patients and their families through education, research and professional development

European Society of Paediatric and Neonatal Intensive Care – ESPNIC

GENEVA, SWITZERLAND. To promote the delivery of the highest quality of care to critically ill children throughout Europe.

European Society of Paediatric and Research (ESPR)

EUROPE. To promote paediatric research in Europe and encourage collaboration between different specialised fields of paediatrics to maintain paediatrics as a unified, scientifically orientated discipline.

Global Health Media Project

WAITSFIELD VERMONT. To help save lives, one health care teaching video at a time

HealthyChildren.org (American Academy of Pediatrics - AAP)

ELK GROVE VILLAGE, ILLINOIS. To attain optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

Healthy Newborn Network

FAIRFIELD CONNECTICUT (part of Save the Children). Addressing critical knowledge gaps in newborn health.

Helping Babies Breathe

ELK GROVE VILLAGE ILLINOIS. To attain optimal physical, mental, and social health and well-being for all infants, children, adolescents and young adults

HINARI Access to health in research programme

GENEVA SWITZERLAND. To enable low- and middle- income countries to gain access to one of the world's largest collections of biomedical and health literature

IDEA Infant & Toddler Coordinators Association

INDIANAPOLIS, INDIANA. To assist any child under the age of three years in the United States or its territories who has a disability or significant delays in development.

Immunization Action Coalition

SAINT PAUL, MINNESOTA. To increase immunization rates and prevent disease by creating and distributing educational materials for health professionals and the public that enhance the delivery of safe and effective immunization services.

Infant and Young Child Nutrition Project

WASHINGTON DC. To improve nutrition for mothers, infants, and young children and promote HIV-free survival of children.

Info for Health

BALTIMORE, MARYLAND. To improve family planning and reproductive health services in low- and middle-income countries.

International Confederation of Midwives

THE HAGUE, THE NETHERLANDS. To strengthen Midwives Associations and to advance the profession of midwifery globally by promoting autonomous midwives as the most appropriate caregivers for childbearing women and in keeping birth normal, in order to enhance the reproductive health of women, and the health of their newborn and their families.

International Pediatric Association

WEBSTER GROVES, MISSOURI.Promoting physical, mental, and social health for all children, and in realizing the highest standards of health for newborns, children, and adolescents in all countries of the world.

LittleSteps, South Africa

SOUTH AFRICA. To make the preterm birth and baby journey a special one by providing information and support

March of Dimes

WHITE PLAINS, NEW YORK. To improve the health of babies by preventing birth defects, premature birth and infant mortality.

Medical Aid Films

LINCOLN'S INN FIELDS, LONDON. Use film and innovative media to transform the health and wellbeing of women and children around the world

Merck for Mothers

KENILWORTH, NEW JERSEY. To bring better healthcare and innovative health solutions to millions of people across the developing – and developed – world, through groundbreaking public-private partnerships.

National Association of Neonatal Nurses (NANN)

CHICAGO, ILLINOIS. To be the professional voice that shapes neonatal nursing through excellence in practice, education, research, and professional development

National Association of Neonatal Therapists (NANT)

CINCINNATI, OHIO. Dedicated to supporting the professional development and personal growth of neonatal occupational therapists, physical therapists and speech-language pathologists.

National Birth Defects Prevention Network

HOUSTON, TEXAS.To establish and maintain a national network of state and population-based programs for birth defects surveillance and research.

National Early Childhood Transition Center (NECTC)

LEXINGTON, KENTUCKY. To examine factors that promote successful transitions between infant/toddler programs, preschool programs, and public school programs for young children with disabilities and their families.

National Library of Medicine

BETHESDA, MARYLAND. maintains and makes available a vast print collection and produces electronic information resources on a wide range of topics that are searched billions of times each year by millions of people around the globe

Neonatal Network of the Swedish Paediatric Nurses Association

SWEDEN. An association of nurses working in or with an interest in health care for children and adolescents.

NICUniversity

WASHINGTON CROSSING, PENNSYLVANIA. To be an educational and informational resource for neonatologists and other members of the neonatology health care team

NICU University

WASHINGTON CROSSING, PENNSYLVANIA. To be an educational and informational resource for neonatologists and other members of the neonatology health care team

NIDCAP Federation

BOSTON, MASSACHUSETTS. To promote the advancement of the philosophy and science of NIDCAP care and to assure the quality of NIDCAP education, training and certification for professionals and hospital systems.

PubMed

BETHESDA, MARYLAND. To develop new information technologies to aid in the understanding of fundamental molecular and genetic processes that control health and disease.

Recommended Standards for Newborn ICU Design

BETHESDA, MARYLAND. Standards for Newborn ICU Design

S.T.A.B.L.E.

PARK CITY, UTAH. To provide this high-level, practical, accessible, and effective education to help reduce infant morbidity and mortality, improve neonatal outcomes and most importantly, improve the quality of life for infants and their families.

Save the Children/Saving Newborn Lives

FAIRFIELD, CONNECTICUT. To give children a healthy start, the opportunity to learn and protection from harm

Singapore Nurses Association – Pediatric and Neonatal Nurses (SNA)

MAUDE ROAD, SINGAPORE. To raise the profile of nursing in Singapore, facilitate and support the contributions of nurses to improve and enhance the health of the population.

SmileTrain

NEW YORK, NEW YORK. To give every cleft child the chance to smile

South African Neonate, Infant and Toddler Support Association (SANITSA)

SOUTH AFRICA. To establish and promote a link between the developmentally at risk and / or ill neonate, infant and toddler (NIT) and their families / caregivers with early intervention services in the community

Technical Assistance Center on Social Emotional Intervention for Young Children

TAMPA, FLORIDA. To use evidence-based practices to improve the social-emotional outcomes for young children with, or at risk for, delays or disabilities.

The Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN)

WASHINGTON DC. To improve and promote the health of women and newborns and to strengthen the nursing profession through the delivery of superior advocacy, research, education and other professional and clinical resources to nurses and other health care professionals.

Union of European Neonatal and Perinatal Societies (UENPS)

MILAN, ITALY. To improve healthcare in the neonatal and perinatal medicine in the European countries.

USAID Global Health E-Learning Center

WASHINGTON DC.To provide its worldwide mission-based health staff with access to state of the art technical global health information.

Your Therapy Source

SCHAGHTICOKE, NEW YORK. Online resource for special education, pediatric occupational therapy and pediatric physical therapy

Zero to Three

WASHINGTON D.C.To ensure that all babies and toddlers have a strong start in life.

Advances in Neonatal Care (AWHONN Journal)

PHILADELPHIA, PENNSYLVANIA. Addressing the practice challenges faced every day—caring for the 40,000-plus low-birth-weight infants in Level II and Level III NICUs each year—the journal promotes evidence-based care and improved outcomes for the tiniest patients and their families.

Complex Child Magazine

INTERNATIONAL. Online magazine and archive of articles relating to children with complex medical issues and disabilities.

Exceptional Parent Magazine

UNITED STATES. Publication for parents of exceptional children.

Gastroenterology Nursing

PHILADELPHIA, PENNSYLVANIA. Delivers the information nurses need to stay ahead in this specialty. The journal keeps gastroenterology nurses and associates informed of the latest developments in research, evidence-based practice techniques, equipment, diagnostics, and therapy.

Journal of Pediatrics

Neonatal Network: Journal of Neonatal Nursing

PETALUMA, CALIFORNIA. To provide quality neonatal education and programs at a reasonable cost to all newborn health care professionals.

Parenting Special Needs Magazine

INTERNATIONAL. Digital Magazine full of tips, resources, articles and more across all special needs.

Preemie Family Newsletter

INTERNATIONAL. Free monthly newsletter for parents in the Neonatal Intensive Care Unit (NICU), at home and into the school years. We also have a professionals list for Preemie Family for NICUs and other programs to get this out to their families.

Preemie Professional Newsletter

INTERNATIONAL. Free monthly newsletter for professionals that care for premature infants in the Neonatal Intensive Care Unit (NICU), at home (Early Intervention as well as Pediatricians and Specialists) and into the school years (Special Education).

First Candle

UNITED STATES. A landmark organization devoted to SIDS education, research and support, that is also now working to do the same with stillbirth and sudden unexpected infant deaths.

Smart911

This service helps 9-1-1 protect your family by providing more information to first responders. You should sign up too, it is free!

Arc, The - for People with Intellectual and Developmental Disabilities

WASHINGTON D.C. To promote and protect the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Caring Bridge

EAGAN, DAKOTA. To amplify the love, hope and compassion in the world, making each health journey easier.

Con Amor Vencerás A.C., Primero lo Primero

MEXICO. All premature babies, including preemies that have passed away and their families and prevention of premature birth. Virtual, in-person and education groups for Spanish speaking families and pros.

Connect 2 NICU, Inc.

UNITED STATES. Founded by Shante Nixon, mother to a 26 1⁄2 week preemie that died at 18 days old, Connected 2 NICU, Inc. has created a support app for families.

Connected Forever

LOCAL NEBRASKA AREA. Currently providing resources, connecting personally and providing education to staff members as they work on core programs. Currently providing resources, connecting personally and providing education to staff members as they work on core programs.

CP Daily Living

Ella Bullis Foundation

WESTERN MICHIGAN AND UNITED STATES. Provide support and resources to families that have been impacted by premature birth or infant loss. Assist with requests for items such as travel (gas cards), food (meal passes), and housing (rent/mortgage payment).

Family Support Network of Central Carolina and Guilford County Partnership for Children

LOCAL. Bedside support, weekly events, lending library, family resource room, Early Intervention Home Visitation Program, support groups, workshops, events for graduate families and also Elizabeth’s Closet (baby supply warehouse) for families with financial challenges.

First Touch at St. George's

ST. GEORGE'S HOSPITAL, LONDON, ENGLAND, UNITED KINGDOM. Equips rooms on the unit for parents to stay in overnight if their baby was poorly, had had surgery, was receiving end of life care or “to room-in” prior to discharge. and has now expanded extensively to include purchasing medical equipment for the neonatal unit, funding specialist nurse training, funding a neonatal stimulation training programme for nurses to work with families on the neonatal unit, facilitating bereavement support which includes funding the annual memorial services and memory boxes for all families.

Gift of Life Foundation

ORLANDO, FL. The Gift of Life offers hope, encouragement, and support to parents of premature babies in the neonatal intensive care unit.

Glo Preemies

SACRAMENTO, CALIFORNIA. After having 3 NICU babies herself, Ashley Randolph decided it was time to give back and support other families. Starting in the Sacramen- to, California region Glo Preemie is a new agency working to provide prayer, support, resources and care package to all families in the NICU.

Graham's Foundation

INTERNATIONAL. Care Packages, Mentor Support, My Preemie App

Hailey's Hope Foundation

NEW YORK STATE. Financial support, “Welcome Home” care packages, and “Memories of a Lifetime” care packages.

Handfull Hearts

CANADA. We support giving back initiatives to people and organizations to embrace their journeys providing a positive perspective and memories towards unfolding their beautiful stories.

Hand to Hold

UNITED STATES. Peer-to-Peer Support, Information, Resources

His Middle Name

INTERNATIONAL. The Lubins started the organization organically from friends and family locally and then grew from there with a strong online presence.

Holding Tiny Hands

IOWA, UNITED STATES. Provides support services to parents of micro-preemies and infants with chronic health issues who endure lengthy stays in the NICU. Tiny Treasures Gift Bags, “Meals for Moms and Dads,” Educational Outreach, Helping Hands Project and Parent Mentoring program

Hope for HIE

WEST BLOOMFIELD TOWNSHIP, MICHIGAN. To foster hope in families affected by Hypoxic Ischemic Encephalopathy (HIE) through awareness, education and support.

Inspire Preemie Community

INTERNATIONAL. Support preemie families from pregnancy to NICU into the adult years.

Jewish Family & Children's Service (Oliver, Ian, and Serenity Wolk Fragile Beginnings)

NEW ENGLAND, USA. Emotional support for families of preemies at home with regular conference calls and in-home visitation.

Keep 'Em Cookin

INTERNATIONAL. Provides parents with the most current information about preventing preterm birth, and it provides emotional support through a forum for women experiencing a high-risk pregnancy.

Life's Little Treasures Foundation

INTERNATIONAL. Programs: Website and PDF info sheets, iPhone app, hospital survival folder for parents, Books & Bubs Hospital Program, newsletter, education seminars, playgroups, 24- hour support line, parent support network, online community, social activities/events, giving programs for families, involvement in research.

Lily's Hope Foundation

UNITED STATES. Care packages that are customized for the family’s specific needs either in the NICU or at home.

Little Big Souls International

INTERNATIONAL (ADVOCATING) AND U.K. AND THROUGHOUT AFRICA (OPERATIONALLY). Every Breath Counts Advocacy campaign, Equipment Donation Program, Parental Support, Sponsor a Preemie Program, Walk for Babies, NICU Support and Medical Conferences, and World Prematurity Events.

Little Giraffe Foundation

UNITED STATES. With the early birth of their twins, Cheyenne and Evan, and the devastating passing of Cheyenne six weeks later, Mike and Amanda Santoro wanted to help bring comfort to families in the NICU and to fund neonatal medical research efforts.

Little Miracles

ISLAND OF JERSEY, CHANNEL ISLANDS, UNITED KINGDOM. Supplies a “Hug in a Box” for families that has practical items for the SCBU stay and provides emotional support upon entry to the SCBU.

Lukas' Fund

UNITED STATES. Provides rooms for preparing to go home and also for families working through end-of-life care; providing education and resources for families and for professionals.

Made for a Miracle

LOCAL CALIFORNIA WITH PLANS FOR UNITED STATES. After having boy/girl twins at 31 weeks due to placental abruption Angelina Castleberry was so inspired by those that reached out to help her that she wanted to pay it forward by providing NICU Care Packages to families in the NICU as well as celebrating the NICU staff and volunteering and participating in the Walk to Remember.

Maison Alexander Support Group

UNITED STATES. Supporting families during their journey with gas/food cards, preemie clothes, items, breastfeeding information and more. We take heart in a place of encouragement, prayer, and donating items.

Miracle Babies

UNITED STATES. Healthy Women, Healthy Children (a program that partners with the YMCA to aid maternal health before and after pregnancy), Family Assistance Program (a grants program based upon assessed needs as well as educational and emotional support), and Raising Miracles (providing information and education regarding development).

Morgan Leary Vaughan Fund

UNITED STATES. The charity is dedicated to promoting public awareness about NEC and to raising funds to advance research efforts surrounding diagnosis, treatment and ultimately, a cure.

Nathan C. Splant Foundation

NW INDIANA AND CHICAGOLAND AREA. Providing parents with needed resources to help with the every day life changes that come with babies born too early and too small. Programs include grant giving, Racing for Babies event, Riding for Babies event and Prematurity Awareness Campaign.

NICU Helping Hands

UNITED STATES. Provides families with all types of assistance. Also has Angel Gown Program - burial gowns made out of donated wedding dresses.

NICUPS

ST. LOUIS, MISSOURI, UNITED STATES. Support group for Mercy Children’s Hospital in St. Louis, Missouri that has a famous fundraiser - Letters from Santa program. For a small donation, Santa will send a personalized letter to the children (young and old) in your life!

Our Premature Children Foundation

BULGARIA. Support families, provide information and help with communication between the family and the hospital, doctors, etc.

Owyn's Butterfly Kisses

GREATER PITTSBURGH, PENNSYLVANIA AREA, UNITED STATES. Annual preemie calendar, special hats and other mementos/gifts for families and fundraising to support West Penn's NICU.

Parents of Preemies Association

OTTAWA, CANADA. Presents for Preemies (package of helpful items for the stay); Caiden’s Library (a book library for parents to read to their child); support groups, events, advocacy (local meal services to give discounts to parents and house cleaners to cater to parents in the NICU or newly home from the NICU).

Parents of Preemies Day

INTERNATIONAL. A special day in May devoted to celebrating parents of preemies, brought to you by Graham's Foundation.

Parent to Parent NICU Family Support

REGIONAL VIA UNIVERSITY OF UTAH HOSPITAL BY WAY OF UTAH, IDAHO, NEVADA & WYOMING. Six months after having a preemie, Becky Hatfield was asked to start her NICU’s support group. To date, they have supported over 20,000 families. Support meetings in the form of Pizza Night, Craft Night or Bingo Night, a catered dinner each month, “Survivor Beads” program and two events, a reunion and an annual dinner with an award. Also provides hospitalized/bed rest support and a NICU baby shower.

Preemie Prints

UNITED STATES. The gift of professional photography through a network of volunteer photographers, support online, information on the website as well as text, email and phone support, sewing meetings, NICU H.O.P.E. meetings, gift bags and events.

Premature Baby & Family

Prematurforeningen Mirakel

SWEDEN. Pernilla Brown had twin girls at 28 weeks and lost one, Anna-Charlotta Hellner had twin boys at 25 weeks and one has cerebral palsy and other challenges. Together they work to make a difference for all preemie families before and after the hospital stay and also families that have lost a baby.

Prematuridade

INTERNATIONAL. Denise Centeno worked for 5 years as a nutritionist in her local NICU in Porto Alegre, south of Brazil. She quickly realized the importance and the lack of finding reliable information and connections in Brazil.

Project Sweet Peas

UNITED STATES. Care packages that meet the needs of different situations of NICU families: Basic ICU, Long-Term ICU, Angel, Holiday, Sibling and Specific Hospital Needs.

Quiet Light Foundation

REGIONAL - NEBRASKA/WESTERN IOWA. Provides peer counseling, lactation counseling, local service referrals, breastfeeding support and support group meetings. Also offers events throughout the year for families and for parents. Support can be provided to any family at any time, regardless of a child’s age.

Raising Little Miracles

Raising Multiples (a MOST Community)

INTERNATIONAL. Mission is to advocate for quality prenatal care, promote healthy deliveries, and supply information to all multiple birth families in order to support successful parenting through every phase of their children's development.

Seattle Parents of Preemies

Sylvie Bells

The Little Bear Foundation, Inc.

UNITED STATES, CANADA & ENGLAND. Supporting families with preemies as well as families going through a post-preemie pregnancy. NICU Survival Kits for new preemie families, peer-to-peer support program, and mentor program.

The Potato Head Project

UNITED STATES. Provides a Mr. or Mrs. Potato Head for picture taking to show growth of a premature baby. More services coming soon.

The Tiny Miracles Foundation (TTMF)

FAIRFIELD, CONNECTICUT, UNITED STATES. In-hospital/community- based parent mentoring, in-hospital family resource rooms and libraries, welcome and home care packages, bereavement support and resource supply bag, emergency financial and equipment assistance, NICU enhancement program, online community and after NICU resources.

Tiny Beating Hearts Initiative

NIGERIA. After giving birth to a 25-week baby girl in 2009, Petra Akinti Onyegbule saw an abundance of preemie stories in western countries but not in Nigeria. From there the Tiny Beating Hearts Initiative was born. Designing a grass roots advocacy program on healthy pregnancies with the objective of reducing preterm birth. Our focus groups are women (and men) in rural areas.

Today is a Good Day

PHILADELPHIA, PENNSYLVANIA AND UNITED STATES (UPON REQUEST) Care packages including a journal, water bottle, a copy of On the Night You Were Born, and “One Day at a Time” bracelets in TIAGD tote bags along with mirrors to NICUs for use during Kangaroo Care sessions.

Trust Your Strength

Will's Way Foundation

Air Charity Network

UNITED STATES. A network of pilots across the country that provice free flights for patients with medical needs.

National Patient Travel Center

UNITED STATES. To ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical transportation.

Chai Lifeline

UNITED STATES.

InfantSEE

UNITED STATES. A public health service program that provides eye and vision care for infants. Member optometrists provide a comprehensive eye assessment for infants between 6 and 12 months of age at no-cost to the families.

Lions Club International

UNITED STATES. A volunteer service organization with local clubs. A local Lions club in or near your community may sponsor a program that may help you buy eyeglasses or get eye care.

Mission Cataract USA

UNITED STATES. A program that provides free cataract surgery to people of all ages who have no other means to pay. Visit the Mission Cataract USA’s website to apply and to find a participating eye care professional in your state.

Sight for Students (by Vision Service Plan)

UNITED STATES. A program by Vision Service Plan that provides free eye exams and eyeglasses to low income and uninsured children 18 years and younger that qualify for the program.

Vision USA

UNITED STATES. Aprogram that provides free eye care to eligible low-income and uninsured people. To apply you must work with a charitable organization, social worker, case worker, or community health agency to submit an application.