Navigating the NICU Journey while Caring for Siblings at Home.

My son, DJ was just shy of 2-years old when his brother, Joshua was born prematurely at 26-weeks gestation. In that moment, life as I knew it had been thoroughly disrupted.  Our routine came to a crashing halt as all sense of normalcy flew out the window along with my sanity.  In its place, gut-wrenching fears I had never experienced … Read More

PREEMIE UPDATE: Superman TJ

In the March edition of our Preemie Family newsletter we learned about preemie “Superman TJ” who was born at 26 weeks and 5 days and weighed in at 1 lb. 15.3 oz. and spent 78 days in the NICU before coming home.  Read more in an update by his mother and Author of Once Upon a Preemie, Jenné Johns. by Jenné Johns, MPH, Mother to TJ and Author of Once Upon a Preemie … Read More

PLEASE: A Few Questions to Save Preemie Lives

I need your help, friends. I have been asked to present at the upcoming International Neonatal Consortium meeting at month’s end.  I am going to be talking about how researchers can best approach families at such a difficult time in the labor and delivery room to discuss a clinical research trial.  Not an easy topic as you can imagine.  I have … Read More