In Memory of a Rebel for CP Families

The following is a message I posted on Karen Pape, MD’s memorial page on her website. For those who are not aware, Dr. Pape was a neonatologist and neuroscientist that was working to revolutionize care with patients diagnosed with all forms of Cerebral Palsy (CP).  Dr. Pape worked tirelessly to help thousands of families around the world better their lives … Read More

Preemies Should Not Be Left Behind

Preemies Should Not Be Left Behind   by Deb Discenza, PreemieWorld Everyday as the Leader of the Inspire Preemie Community I talk about trusting one’s gut when it comes to a preemie’s challenges either medical, developmental or educational. I impart that lesson with street cred that can only come from being there and doing that. I was that parent and … Read More


In our December edition of our Preemie Family newsletter we learned about the amazing miracle Antonia, a 29-weeker who was 3 lb. 1 oz. at birth and spent 66 days in the NICU. Read more in an update by her mother, Vanessa . . .  by Vanessa, Antonia’s Mother: Before having a preemie, I never thought something like that would happen to … Read More