In our February edition of our Preemie Family newsletter we learned about Sophia King, who was born at 24 weeks, weighed in at 1 lbs 9 oz. and was in the NICU for 103 days before going home. Read more in an update by her mother, Stacy below.
by Stacy, Sophia’s Mother
It has been a busy 4 years. Sophia has overcome so much in her short life. And even though she is a tiny thing she always keeps going. She does have special needs but the is smart, happy, funny, energetic, curious, sweet, beautiful and amazing. She inspires me and others to never give up no matter what life throws at you.
We spent 103 days in the NICU and it was the proverbial roller coaster. Every day her spirit shined. We learned so much that as a first time parent I had no clue about, so very grateful for the medical staff. At the time you feel like this is one on the worst things that can happen to you but after I look back and realize that maybe we needed this to become the strong family we are today, kinda like bootcamp. I learned so much from my time there and after I could write a book. I am also very thankful to the guy who gave us paperwork at the hospital. He was so good that everything was lined up for us when we went home.
Since leaving the NICU and going home we have been busy. She has Occupational, Speech, physical and feeding therapies. She had left eye surgery for strabismus and nystagmus, and wears glasses. Diagnosed with Asthma, pigeon toed, soft hips, low immune system and Sensory Processing Disorder. We have a lot of speciality doctors, too many to list. I try my best to make it fun and interesting which helps things go better. She also goes to a special needs dance class and we should start a gymnastic class soon to work on her strength. She has such an upbeat personality and determination that helps me keep going. I do it all for my love of tiny baby girl, that in the hopes that one day she will be therapy free and lead a somewhat typical life, okay a better than typical life.
During our NICU stay we were able to stay at the Ronald McDonald House of Charities. This place helps families with children in the hospital and they are a wonderful resource. Ask if your hospital has one near or even a room in the hospital. The in-hospital rooms usually have any information you need, even food and a tv to just take a break and more. If you are looking for information, go to the March of Dimes website. And this wonderful organization called Graham’s Foundation supports parents of preemies coping with premature birth and other challenges. You can request a care package and they will send it to you directly to the NICU.
One day I wish to be able to help others going through experiences like this but it will have to wait a while. Until then my little family will be pushing forward and enjoying our special life.
Photo Credits: Stacy King
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