Preemie Story – July 2023

Preemie’s Full Name: Nikolas Mai Dević
Parent Name: Zoran Dević
Gestation at Birth: (weeks) 27
Days in the NICU: 55 and currently still in the NICU

“Our preemie is a tiny warrior with an indomitable spirit, inspiring us every day with strength beyond measure.”

Preemie Story:

In the midst of our remarkable journey, my partner Ina and I found ourselves navigating unexpected challenges on the road to parenthood. As we eagerly anticipated the arrival of our little one, life had a different plan in store for us.

During Ina’s pregnancy, she began experiencing discomfort in her upper belly. Concerned for her well-being and that of our unborn child, we sought medical advice. Despite undergoing numerous tests, no cause for her pain could be found, leaving us with a temporary sense of relief.

But fate had other plans. It was one fateful Wednesday night when Ina suddenly felt intense pain. Not willing to take any chances, we rushed to the emergency room, hoping for answers and reassurance. The medical team did their best to ease her pain and conducted tests, but the true cause remained elusive. We were assured that it was a normal part of pregnancy.

Days passed, and the pain returned, even more intense than before. We returned to the emergency room, determined to uncover the root of Ina’s suffering. Tests were performed, and although they considered sending us home, my instincts told me otherwise. I insisted on further evaluation and, as a result, we were directed to a specialized emergency room for pregnant women.

Within moments of our arrival, the medical team sprang into action. Something was indeed wrong, and time became a critical factor. Ina’s blood pressure skyrocketed, painting a worrisome picture. Test results confirmed our worst fears.

In a race against time, doctors and nurses swiftly surrounded Ina, their expertise focused on saving her life and that of our unborn child. The decision was clear – an emergency cesarean section was necessary to give our baby the best chance at survival.

It was on that life-altering Saturday, at 21:08, that our son, Nikolas, entered the world. Born prematurely at just 27 weeks, he was a tiny bundle, measuring a mere 33 centimeters and weighing only 760 grams. The early days of his life were filled with uncertainties as he relied on medical support to breathe. However, his other test results offered a glimmer of hope amidst the challenges we faced.

Today, Nikolas has spent 55 days in the Neonatal Intensive Care Unit (NICU), where a dedicated team of healthcare professionals diligently cares for him. Our journey has been a rollercoaster of emotions, marked by both tears and hope. We are grateful for the fortunate turn of events that led us to this point.

Ina’s diagnosis of severe preeclampsia and HELLP syndrome served as a stark reminder of the dangers we narrowly escaped. Our timely actions ensured the safety and well-being of both mother and child. Though the road has been challenging, our determination and strength have carried us through.

Each passing day brings renewed strength and growth for Nikolas, a testament to his resilience and fighting spirit. In just one week’s time, we eagerly await the moment when we can finally bring our little warrior home, where he will be surrounded by the love and warmth of our family.

Our story is one of unwavering determination, the power of medical expertise, and the unbreakable bonds of love. Through the twists and turns, our journey stands as a testament to the resilience of the human spirit and the triumph of hope in the face of adversity.

Advice for Preemie Parents:

We are still in NICU, but not for very long now. He just needs to gain a little more weight.

My advice: To parents with a preemie in the NICU, my advice is to stay strong. This is a marathon, and even on tough days, hold onto hope. Celebrate every small step forward and lean on the support of the medical team. Take care of yourselves and cherish the moments with your little warrior. Good days will come, and your baby’s resilience will shine through. You’re doing an amazing job!

Current age and milestones:

  • 55 days old
  • gaining weight (almost 1,5kg)
  • breathing without assistance
  • bottle feeding every meal
  • out of incubator
  • his mom can change his diaper and feed him