Nicholas is TEN YEARS OLD TODAY!

To all the many wonderful people who have written us by email, FB, twitter and letter… My “little man”… Ten years later Nicholas is TEN! First of all I thank my God and Nicholas’ for the course of his destiny that I get to say it’s Nicholas’ TENTH birthday on the 15th of March! Our lives have all been so … Read More

COOL: Preemie Bill of Rights

We are so excited to partner with the Foundation for Premature Infants! This organization, headed by Michael Litten and supported by a team of developmental therapy professionals, is working to provide every preemie with the chance for developmentally appropriate care in the NICU. Check out their “Preemie Bill of Rights “ here. For more information about the Foundation for Premature … Read More

RSV Season Advocacy: Tips Sheet, Survey, & More

Sadly I have heard of too many parents with preemies that were denied the Synagis shot and despite their best efforts at hand-washing, isolation and more, they still wound up in the hospital with RSV. As a parent that suffered through a winter with RSV isolation and more but was lucky enough to get the Synagis drug for my daughter, … Read More