The inaugural Speaking of NEC: Unplugged event is a one-day regional conference focused on identifying practical solutions for reducing the devastating effects of Necrotizing Enterocolitis (NEC) on premature infants and their families to be held in Greater Hartford, Connecticut on Monday, June 11, 2018.
Speaking of NEC: Unplugged will bring together relevant NEC experts (neonatologists, clinicians, and researchers) and influencers (parents, patient advocates, medical and nursing students, media, and policy makers) to engage and learn from each other’s experiences across the full continuum of NEC; its impact on patients and their parents, the cost to the hospitals that treat it, and the methods to improve both its short and long-term outcomes.
Our overarching goals for the day:
EDUCATE attendees about NEC and its impact on their community
SPARK interest in the disease and discussion among attendees
INSPIRE community engagement and action in the prevention, diagnosis, and treatment of NEC.
The Morgan Leary Vaughan Fund (Morgan’s Fund) emerged from a need to establish a mechanism for:
Disseminating credible and timely information about Necrotizing Enterocolitis (NEC) to parents whose infants are most at risk for developing NEC
Raising the level of public awareness about NEC and the potentially devastating effects it can have on infants and their families
Advancing research to prevent, diagnose, treat, and ultimately, cure NEC.
Currently, it is headquartered in Naugatuck, Connecticut with a satellite office in Austin, Texas.