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Day of the heart ill child
May 5, 2018 @ 8:00 am - May 17, 2018 @ 5:00 pm EDT
As an association for children with heart disease, we represent “only” a few people, to which just as few are added each year, namely to the 50: so many children are born every year with heart disease or one is diagnosed with a child. As little as children are, so dramatically goes the diagnosis of the life of each of these families of small patients.
We can not take the fears of anyone, but we are there for them all when it comes to finding the best treatment and finding and paving the way to it. We also organize offers for families so that their children are not disadvantaged at school and in their free time, and how others can be encouraged and entertained . Many parents get involved in our club, who have come to know and appreciate the value of this assistance.
But we also need the support of the population – and we keep asking ourselves how we can bring this small minority to the attention of the general public with such a burdensome challenge
This year we have experienced a surprise: three Maturant, Sharel Del Pan, Noemi Dunkel and Isabel Ebner, the class 5A trade and service of the state vocational school “J. Gutenberg “Bolzano, have designed a calendar as part of a project of this school year – and dedicated to our association. We, the association Kinderherz, were informed when the project work of the three committed ladies was already advanced.
Such an initiative means tailwind for us. We’re presenting the calendar on May 5 from 11am on the second floor of the Twenty department store. Isabel, Sharel and Noemi are also at the booth until 5 pm, which is provided by the state shopping center Twenty .
The calendar is available for a voluntary donation. The proceeds are donated by the three students to the association Kinderherz.
- On June 16, 2017, the international congress “The adult patient with a congenital faculty heart desease” will take place in the Eurac, at which the association “Kinderherz” introduces itself for the first time to an international audience. It is about the transition of children with congenital heart disease into adulthood.
- As information for all families with a child with heart disease:
from the 27th to the 30th of July 2017 the Family Days take place in Pfelders. Together we are inspired on this long weekend by the beautiful and untouched mountains of the farthest Passeiertal.
We leave everyday life behind and enjoy family walks together with a certified nature park guide, sporting activities, playing together and wellbeing.