PerinatalHospice.org is a clearinghouse of information about perinatal hospice & palliative care, including many resources for parents and caregivers as well as an international list of more than 300 programs. The website was founded in 2006 by and is edited by Amy Kuebelbeck, a former reporter and editor for The Associated Press and other news organizations and lead author of A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life Is Expected to Be Brief (Johns Hopkins University Press, 2011; also published in Poland, 2017). She described her experience of continuing a pregnancy with a life-limiting prenatal diagnosis in her memoir, Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life (Loyola Press, 2003), with translations published in Italy (Aspettando Gabriel, Edizioni San Paolo, 2005) and in South Korea. The book received attention from a variety of media, and Publishers Weekly called it “exquisite.” Both books are used by many hospitals and clinics as resources for patients.
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Perinatal Hospice & Palliative Care